Niece Update
Well I just talked with my niece and found out that her baby girl will not make it. The complications she has are not compatible with life. They discovered that the heart only has 3 chambers, the chord that runs between the two sides of the brain never developed, she has a full cleft palette (the only thing that could be fixed) and she's got both trisomy 13 and 18. They did an amnio right away to confirm everything and when those results come back her and her husband will decide when to terminate. She is only 22 weeks along right now and the results will take 2 weeks, so she'll be around 24 weeks along when the time comes.
They are just devestated as is there 5 yr old son, who was SO excited to have a little sister. He doesn't understand what's going on. Please keep them and our whole family in your prayers.
They are just devestated as is there 5 yr old son, who was SO excited to have a little sister. He doesn't understand what's going on. Please keep them and our whole family in your prayers.
Monica
Monica,
I am so sorry this has happened. My niece went through the same thing, she was told that he baby would most likely die right after her first breath. This was 4 yrs ago. She did choose to terminate at 26 weeks and she held her right after and dressed her for a private immediate family grave side service. She now has her second baby and she is 2. This little one is full of energy.
I will say a prayer for your niece to be able to except and make her decision for the best of the baby... Again sorry and here's you a HUGGGG!!!
Karen
I am so sorry this has happened. My niece went through the same thing, she was told that he baby would most likely die right after her first breath. This was 4 yrs ago. She did choose to terminate at 26 weeks and she held her right after and dressed her for a private immediate family grave side service. She now has her second baby and she is 2. This little one is full of energy.
I will say a prayer for your niece to be able to except and make her decision for the best of the baby... Again sorry and here's you a HUGGGG!!!
Karen
Monica my heart goes out to you and your family, I will keep you all in my thoughts and prayers,
Success begins with wise choices I make,I will not let noncompliance be my mistake, The surgery I had was to assist me in changes. My compliance is for a success long range, So I will think before I decide to cheat. Remember the goals I want to meet. For this surgery is not something I was force to do It was what I wanted for a healthy life!
Monica I'm truly sorry for what your family is now facing. Be strong but it is okay to cry with your neice. When my daughter lost her first baby (she was full term and died just before birth) we were devastated just as you and your family are. Crying and talking and just being with each other helped. You need to validate that she was a life.
To some this may sound morbid but we have pictures of our daughter holding our granddaughter. We all took turns holding her. As much as it hurt then it is now healing to have validated her even tho she never took a breath. My prayers are with you and your family at this time.
To some this may sound morbid but we have pictures of our daughter holding our granddaughter. We all took turns holding her. As much as it hurt then it is now healing to have validated her even tho she never took a breath. My prayers are with you and your family at this time.
Carol
Thank you for your kind words Carol. Crystal does plan on having anyone who wants to be there right after Amy is born hold her and say their good byes. You are right, even though she will only be a peanut of a baby, she will always be a part of our family. Pictures will be taken as well as foot and hand prints too.
Thank you for your prayers, keep them coming. No one in our family has had to bury a baby/child before.
Thank you for your prayers, keep them coming. No one in our family has had to bury a baby/child before.
Monica
Monica
I am soooo sorry, I think the hardest thing in the world that I can ever conceive is for a parent to lose a child. I am not sure how a parent ever truly copes. The grief would be so overwhelming. I am so sorry that your family has to go through this.
You may want to suggest the Compassionate Friends group to your niece when you think she is ready. It is for parents who have lost a child.
This little girl is an important person in their life and they are doing the best thing in creating some memories and validating her existence. It will help them get through the grief process.
Many hugs and prayers for your family. My heart aches for you. I truly understand one of those diagnosis of trisomy 13. We live with it every day.
This is a time that you questions God and that is OK. He will give you strength to get through this. Grieve as if this was a full term baby.
Hugs and prayers.
I am soooo sorry, I think the hardest thing in the world that I can ever conceive is for a parent to lose a child. I am not sure how a parent ever truly copes. The grief would be so overwhelming. I am so sorry that your family has to go through this.
You may want to suggest the Compassionate Friends group to your niece when you think she is ready. It is for parents who have lost a child.
This little girl is an important person in their life and they are doing the best thing in creating some memories and validating her existence. It will help them get through the grief process.
Many hugs and prayers for your family. My heart aches for you. I truly understand one of those diagnosis of trisomy 13. We live with it every day.
This is a time that you questions God and that is OK. He will give you strength to get through this. Grieve as if this was a full term baby.
Hugs and prayers.
Cat Lady
Most Active
Recent Topics
