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funkyphillygirl
on 6/13/12 12:16 am
Topic: RE: Type 1 Diabetes post op (RNY)

If you don't mind the question, how old is your wife?  I write about this alot, but there is a type of diabetes that many call Type 1.5 - it's a combination of type 1 and type 2.  It's really an autoimmune disease, in that the body attacks it's own insulin making cells and causes a slow onset of insulin dependent diabetes. It's often found in normal weight adults around the age of 30. 

I have that type of diabetes, although was not normal weight at diagnosis.  I have been diabetic for almost 26 years, insulin dependent for 25 of the 26 years and had RNY in September. 

I have also read that some people experience severe hypoglycemia a year or two out from RNY (and other weight loss surgeries).  I know less about this, but there have been a number of postings about it.

Had your surgery at Abington, eh?  I'm a Montgomery County girl myself and had my surgery at Penn/Presby, although I had a consult with Dr. G. at Abington at one point. 

joneswood
on 6/12/12 7:44 pm
Topic: Type 1 Diabetes post op (RNY)
 My wife and I both have ad GB surgery (me DS and she RNY).  I writing about her.  She developed what appears to be type 1 diabetes AFTER the surgery.  Recently, blood sugar levels have been all over the place and went from 20 to over 300 in one day (she was unconscious at 20 and taken to hospital).  One doctor believes the diabetes could be mixed with or complicated by metabolism and malabsorbtion changes due to RNY.  Anyone have a similar experience or heard of this happening?  Doctors are unsure what else is going on.
(deactivated member)
on 6/7/12 9:07 pm - United Kingdom
Topic: RE: Lap band isn't a good idea?!
If you are in the UK you can call for a free consultation with a bariatric surgery expert about this issue and more http://www.thebariatricgroup.co.uk/non-surgical/one-to-one-process/
You can also find out about all the post operative care.
funkyphillygirl
on 6/6/12 8:55 am
Topic: RE: pre-op sleeve type 2 pump user
If your c-peptide is already low, then you likely are NOT a Type 2 diabetic.  Type 2's typically have normal to high c-peptide readings, but their bodies can't effectively use the insulin they make.  Those of us with low c-peptides are largely considered Type 1's (or 1.5's).  Our insulin production is low to none and we need to supplement with exogenous (external injected) insulin to function.

I do hope you are able to get a consult with an endocrinologist.  It sounds like you definitely need that to be successful with your diabetes management.  And you will be really surprised how much the weight reduction and the diabetes management will interact!

Keep me posted!
dpflorida
on 6/6/12 3:40 am - FL
VSG on 07/12/12
Topic: RE: pre-op sleeve type 2 pump user
 Officially type 2 but my c- peptide was low when it was checked. Right now I have no endo  and my surgeon knows it. He may have someone in the hospital who can manage it and I will definitely want to see them preop. better to know ahead what I am facing . I know I will be juggling and checking blood sugar forever, but I do that now anyway! Thanks sooo much for your input! 
Denise
            
funkyphillygirl
on 6/6/12 12:38 am
Topic: RE: pre-op sleeve type 2 pump user
My first question - are you sure you are a Type 2?  You MIGHT be a Type 1.5 (LADA) diabetic...have you had the tests to ascertain if you are?  Type 1.5's are usually diagnosed around 30 and have a slowly failing pancreas - meaning that orals don't work and eventually, like all Type 1's, insulin management is needed.  It's important to know if this is you, since it will mean that insulin will be needed, regardless of your weight loss. 

I am a Type 1.5 for almost 26 years and insulin dependent for 25 of those.  I had RNY in September 2011.  I did not need insulin for the first day after surgery, and then right back on as soon as I was able to drink water.  My blood sugar stayed very stable on my surgery day, but started to spike after.  The good news is that my insulin needs have changed a great deal as my weight has reduced, but I still need insulin and always will.  I've decreased my use of Lantus by 65%, gotten off of 3 orals, decreased metformin by 50%, but increased my bolus doses appropriately.  I'm still making regular tweaks to all of this, even after 70 pounds lost and almost 9 months after surgery.

If you are not this type of diabetic, chances are you will experience what many do - you won't need insulin and that will happen very quickly after surgery.  But it might be good to get this clarified now, so you can manage your own expectations about what the surgery will and will not do for you.

Here's my suggestion - take it for what it is worth - see if you can find out what endocrinologists are on staff at the hospital where you plan to have your sugery, and see them for a consult now.  Since someone will have to follow you while you are in ths hospital, you might as well establish a relationship with them NOW so they can effectively help you with any management issues you will have both pre and  post-surgery.  I did that, as well as texted with my regular endo while in the hospital.  I had to stay an extra day because of blood sugar control issues and was followed by the endocrinology group at the hospital.  they were very good at working with me since I knew myself best.

Is your surgeon requiring you to get endo clearance before surgery? Maybe you already have that from the prior endocrinologist, but that's another reason I'd see the service that is at the hospital where your surgery is.  I'm sure your surgeon's practice works regularly with someone, so perhaps they can suggest an endo - and maybe help to expedite an appointment so you stay on schedule with your July date.

You're also going to need to work with someone fairly closely in the weeks and early months after surgery.  As your weight reduces, your insulin and medication needs WILL change, so I'd say it's worth it to see someone now and not wait.  If it delays your surgery, that will be tough to take, but it may be worth it.  I'm betting the surgeon's office can help you there though.

Let us know how things go please!  And best of luck to you.

P.S. - Here's a link on LADA that might help you:
http://forecast.diabetes.org/magazine/features/other-diabete s-lada-or-type-15?page=0%2C1

To determine Type 1.5, you'll want to have a GAD-65 and a c-peptide blood test drawn.  There might be one other as well?
dpflorida
on 6/5/12 6:47 am, edited 7/10/12 10:27 am - FL
VSG on 07/12/12
Topic: pre-op sleeve type 2 pump user
   I am preparing for surgery. Just received approval letter for GB-RNY yesterday. BUT... My endocrinologist just quit her practice on very short notice. I am on an insulin pump which I have used for 3 1/2 years since my pancreas is shot. My surgeon wanted to go ahead and do the surgery and just put me on sliding scale regular insulin shots after surgery because he thinks I will not need insulin at all after surgery, but there is no way to know. I hope he is right. Anyone out there had any experience with this? 
My gut feeling is to wait until I can get on board with a new endocrinologist that can be available to walk me through the transition if needed. I also have thyroid problems, so my thyroid medication may need to change as well. I am very disappointed in the possible delay because I was all set to have the 
surgery in July. Now, I may have to wait until September. My primary care Dr. has already told me she will not do pump management. I am a Type II but my pancreas is burnt out,so that is why I am on insulin. I am vacillating whether or not to wait.... been a long journey thus far and do not want to lose my momentum.
I am not asking for medical advice, just feedback and wondering if anyone else has gone through this...

thanks
DPFlorida
            
lisalynn
on 6/2/12 6:34 pm - MS
Topic: RE: Low Blood Sugar?
thank you for the tips..I have been trying lately to eat more protein with the carbs to see if it helps my sugar stay up longer, and sme days it works and others it doesn't,..It is just all over the place right now..one day it will be dropping all day and i have to constantly watch it and eat every half hour to hour..and the next day it will be normal all day, but it takes me like a whole day to recover from the day before of low blood sugars because it makes me so tired..it is very unpredictable right now also, i havn't been able to pin point one thing that will help stabalize it every time yet..some things work one time then not another..anyway Im glad to get some support, im supposed to be going to see an endocrinologist soon, so maybe we can get this figured out..
Kasei1980
on 5/31/12 12:40 am - WA
Topic: RE: NIPHS - Noninsulinoma Pancreatogenous hypoglycemia syndrome
I had my RY-GB June 14,10 and have have done o****il about the last yr. I have always been hypoglycemic and been able to control it. Last yr I started getting highs that would go up and crash down lower than I had before and started having symptoms I hadn't been use to. Passing out, vomiting, light headed, dizziness, and extremely tired all the time. The Dr. at Madigan didn't know how to treat me because he hadn't see this before so just had me checking my blood sugars and following-up every 3-6 months. I finally went off post. They did a stream of test and I got diagnosed with NIPHS with possible underlying Diabetes. Which runs like wild fire through my family. I have been on Precose for a month now and they just increased my dose. If this doesn't work there is one other med then its off to the OR. 
 
  At my appt yesterday we went into great lengths talking about diet changes switching to whole grains and he stressed how important fiber and protein are. Also staying completely away from sugar which I do anyway. I am going to talk to their dietitian and hopefully alot more helpful hints.
funkyphillygirl
on 5/30/12 11:50 pm
Topic: RE: diabetic neuropathy medications
I'm sorry, but I don't really know anything about neuropathy meds.  Have you talked with your endocrinologist or neurologist about options?
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