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lrjoy
on 2/8/12 2:24 am - IL
Topic: RE: 7 year post op, and diabetes came back STRONGER
After years of researching and working on my personal issues I have to agree that Diabetes is much more complicated than most believe -it's not always this neat, clean Type 1 or 2, lose weight and all is well kind of thing. 

I too learned a lot through my own reading and researching and advocacy for myself.  I had RNY in October of 2010 not so much for weight loss, but to get better control.  I was diagnosed with gestational diabetes in 1981 and it never went away. 

Since then I have run marathon's (under training with dietician and physical trainer specializing in diabetic patients) been on every med and finally meds and insulin and well, it just kept getting worse (my resistence). 

My highest weight (I'm 5'4") was 224 after childbirth and the lowest I could get was 190 and I was miserable when I got to that weight.  I researched and thought about surgery for 5 years before comitting to the procedure as a way to hopefully stem the tide of complications that were just starting with my diabetes. 

I weighed 188 lbs the morning of my surgery and 36 hours later and 12 pounds heavier (water I'm sure) I was off all insulin and meds.   It took 9 months, gym 3 times a week (again working with a very specialized trainer) and today I am 135 pounds and so far, it is working.  My fasting blood sugars are alway right around 100, 3 hrs are lower than 116.    

Yes the weight loss was an added benefit, but definitely not the goal of this surgery.  So, from the beginning, I knew I had to have something where my digestive system was impacted - thus RNY.  Another factor, my cholesterol and Tri's are all in normal range now - it took about a total of 6 months for that to happen.  Really good for me as I could not tolerate any Statin that the doctor tried with me. 

I knew the day I had my surgery that my poor little Pancreas had been "putting out" for many years and that at some point in the future it might not be able to put out enough, but the hope for me is that if that day comes and I am once again in a place where insulin is a necessity - I hope that the resistence is still gone - that is why I am maintaining as healthy a life style as I can and thanking God that this worked for me and praying that they figure out EXACTLY what physiciological change in the body is making this work for at least those people who fit my "profile". 

The best part, I now understand what "runners high" is - I feel great most of the time and that never happened in my entire life (really - even as a young Extremely active person).   I always participated in sports and always went home and fell down dog tired - wondering why other people felt so great afterwards.

My biggest complaint right now  . . . I don't fit in exactly anywhere.  My support group is great, but even there I have experienced prejuidice - you only had to lose a small amount of weight . . . and well forget about anyone else outside of the Bariatric Surgery World, as far as they are concerned I somehow "cheated" my way to weight loss, they don't even want to hear about how good I feel because my insulin now works right.   That part is very frustrating.  I wish there was a support group just for Metabloic sydrome patients . . . lower BMI before surgery . . .  maybe someday.

Lily

worleybird67
on 2/7/12 11:54 pm - OH
Topic: RE: Metformin
 I totally agree !!!  How am I suppose to know what criteria needs to be met if it is not stated anywhere.  I would be interested in knowing what your other thoughts are!!!!!  I could give you my email address if you would rather email me about it privately.  Just let me know.
funkyphillygirl
on 2/7/12 11:46 pm
Topic: RE: Metformin
I might also try to challenge on the basis that, if it is not defined anywhere, how are you or your insurance company supposed to know when you either have met the criteria or you haven't?  I have other thoughts about ways to circumvent this, but they are probably best kept to myself....  :-)  Best of luck.
worleybird67
on 2/4/12 1:35 am - OH
Topic: RE: Metformin
The problem is, it is not defined anywhere.  When I talk to United Healthcare they tell me it is a restriction that my employer has placed as criteria for them to pay for the surgery (not all of it mind you only $25,000 and only to the hospital.  I am still responsible for the anesthesia fees, doctor fees and any other fees that accumulate.  They are only paying for the hospital expenses).  When I call my benefits department where I work, they know nothing about these restrictions and as of yet have not been able to find any paperwork which has these restrictions outlined.  I have never been given anything that states these restrictions from my employer or United Healthcare and it is not in our summary of benefits booklet from the insurance. 

The benefits person I have been speaking with is in the process of trying to locate this policy and if it is not able to be located and I have not received it, I plan to appeal based on this and see what happens.  In the meantime, the doctor has reluctantly put me on medications in an attempt to satisfy this criteria requirement but feels almost certain that it will work which will mean no surgery because it was effective and needs to be ineffective.  It stinks !!!!!!!
valjac50
on 2/3/12 8:26 pm - Lumberton, NJ
Topic: RE: adjust ing pump while on pre-op diet
I'm so glad I found this post! I am getting clearances for the rny, and on the pump. I am on U-500, 40 units max right now, with a basal of 1.75. I notice my levels are lower than before, but still not in control. I am very insulin resistant.

My concern is how to use the pump after surgery. Will I even need it? I go to see my endo again in March. He yelled at me to have the surgery because he said there is nothing more he can do, except increase the insulin. It has caused me to gain weight, and I have neuropathy in my feel and ankles, and am on temporary disability from work because of the pain. Also, a previous heart condition has returned, and I have just learned from the pulmonolgist's prescreening, I have emphysema.  I am starting to be scared they won't even do the surgery.

I don't have to do a pre surgery diet, but who wants to eat anyway? I don't and haven't eaten much of anything for years, but the pounds just stay and increase. I am so frustrated and tired of all of these problems, and the pain really doesn't help matters.
valjac50
on 2/3/12 8:13 pm - Lumberton, NJ
Topic: RE: anyone dealing with diabetic neuropathy?
I also have the same problem. I am taking oxycodone and ibuprofen prescribed by my neurologist, and cymbalta for depression. He says the only thing that will help me is the surgery, now. But I have other medical issues that are scaring me.

I just found out I have emphysema. And a previous heart cardiomyopathy has returned after 5 years. The chronic foot and ankle pain has forced me to go out on temporary disability until after I have the surgery. But now I am wondering if they will even do it!

You probably will get more relief as you lose more weight, but the nerve damage is something you will have to have your doctor prescribe a better med for. I took gabapentin and vicoprofen, but they didn't continue to work. I since graduated to oxycodone, and it helps immensely. Also, I am on an insulin pump (severe insulin resistance) and it seems to be really helping my sugars with better control. It seems like a combination of things are the answer, if any, to this problem.
Good luck! I will be praying for you.
funkyphillygirl
on 2/3/12 12:34 pm
Topic: RE: Metformin
If your insurance has this stipulation, then this is a question for them.  I am sure they have this defined within the restrictions.  it's probably an hba1c number, but it might really be any criteria.  I'd call them and ask them to define it - or talk to your HR department.  Good luck!
BWB
on 2/3/12 9:54 am
Topic: RE: a1c 12.5 scard
 You can add me to the list of diabetics that was not in control of my sugar level.  The preop diet helped tremendously and now 5 months out, I still have to take some insulin but not nearly what it used to be.  Metformin gave me  uncontrollable diahrea so that is out of the question.  Right now my fasting sugar is 130 to 150ish.  

I agree with the other comments:  you need an endocrinoligist and I do too.  They are so booked up and so few and far between.  You will feel so much better when you get everything under control.
               
worleybird67
on 2/3/12 9:48 am - OH
Topic: Metformin

I am a newly diagnosed diabetic - type 2 who the doctor just recently placed on metformin 1000 mg twice a day.  My hgb alc was only 6.1 but my fasting glucoses X 2 were elevated 143 and 157.  I am trying to get insurance approval for the sleeve and meet all of the criteria for the insurance company but have been denied because my employer has stipulations in this coverage which states that you have to be uncontrolled on medications for diabetes and hypertension.   I have just been placed on meds for both in order to see if I can satisfy this criteria but of course, the meds have to be unsuccessful at treating these conditions.  My question is what criteria would indicate that the metformin is not controlling the diabetes or is an unsuccessful medications???  Thanks!

funkyphillygirl
on 2/3/12 12:05 am
Topic: RE: carbs....how many?????
I'd talk to your RD and your endocrinologist about what they think your goal should be.  I can agree with you that trying to exercise as a diabetic is a challenge.  I drop about 90 points per half hour of exercise.  So, I try to time if after a meal and then reduce insulin at that meal, but it's all quite tricky!  Have you tried timing your workout to a meal?
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