Recent Posts
Topic: RE: Please Help, need advice
Thank you both so very much for your support. I have been through so much in the last 3-4yrs. My back injury at work, taking in my father and caring for him until he died in 8/09, injury my back again in 6/09 after being thrown from a horse (spent almost 2 weeks in hospital), my house burnt to the ground the day after I got out of the hospital from horse accident (insurance had lapsed 2 days before fire since I was in the hospital and couldn't pay it), I had to close the horse rescue I had been running (I was the brains, not the braun) and in 5/10 I had emergency surgery to remove my lap band due to major port infection and slippage. We moved in 6/10 right after my surgery only to have the rental house have plumbing problems and flood. All my weight has come back plus even more co-morbidities. I am so tired from all of lifes crap.
I went to the doctor this morning. I cried so much. My doctor seemed to kinda understand but I dont know. She prescribed me diuretics for two reasons, 1) swelling in my hands, feet, ankles etc, 2) my BP is a little high ( which could be from the amount of pain Im in). She also prescribed me Vicodin, just enough to help til surgery next week. She had blood drawn for a ton of lab tests also.
I told my husband about my visit and what she prescribed. All he said is, "you don't have to take the vicodin if you don't really need it." Like he completely does not get it!!!! He has NO CLUE the amount of pain, stiffness and misery I am in. If I try to explain it he just cuts me off, or gets angry (I think cause he can't help me) o r "advises" me on what to do!!!! He got his first tattoo last weekend and almost died from the pain. I had my makeup tattooed yrs ago so I am not a wimp. I told him if you think that was suffering live a couple days in my shoes. If one more person tells me to "walk more, exercise more, eat this, dont eat that, etc etc etc" I am going to f---ing loose it!!!!!!
I am sorry but I have NO ONE to talk to about this or vent to, anyone. Let alone someone that would even understand a little.
Thank you for just listening. I have no friends here so I have no support for this. My husband supports my surgery but doesn't understand my illness. I am sooooo f---ing alone.
I went to the doctor this morning. I cried so much. My doctor seemed to kinda understand but I dont know. She prescribed me diuretics for two reasons, 1) swelling in my hands, feet, ankles etc, 2) my BP is a little high ( which could be from the amount of pain Im in). She also prescribed me Vicodin, just enough to help til surgery next week. She had blood drawn for a ton of lab tests also.
I told my husband about my visit and what she prescribed. All he said is, "you don't have to take the vicodin if you don't really need it." Like he completely does not get it!!!! He has NO CLUE the amount of pain, stiffness and misery I am in. If I try to explain it he just cuts me off, or gets angry (I think cause he can't help me) o r "advises" me on what to do!!!! He got his first tattoo last weekend and almost died from the pain. I had my makeup tattooed yrs ago so I am not a wimp. I told him if you think that was suffering live a couple days in my shoes. If one more person tells me to "walk more, exercise more, eat this, dont eat that, etc etc etc" I am going to f---ing loose it!!!!!!
I am sorry but I have NO ONE to talk to about this or vent to, anyone. Let alone someone that would even understand a little.
Thank you for just listening. I have no friends here so I have no support for this. My husband supports my surgery but doesn't understand my illness. I am sooooo f---ing alone.
Topic: RE: Please Help, need advice
Hon please don't suffer because others don't understand! Myself I take morphine and oxycodone every day but I use it as prescribed and I do not consider myself an addict. I may be physically addicted in the sense that I would have withdrawls if I quit cold turkey but I don't doctor shop, pharmacy shop or steal to get my drugs. There is a whole different mind set in someone who uses drugs to get high and someone who needs them to function on a daily basis because of pain. Please get back with the pain clinic so they can get you on medication to help you, not all of the meds for fibro are narcotics. However if you need them to have a better quality life don't turn them down for fear of being labeled a junkie. Shame on your hubby for treating you this way, does he enjoy watching you be in pain? I can't imagine my husband saying anything unless he truely felt I needed intervention and he hasn't so I feel confident that I'm not out of line with my med use. Actually studies have shown people who use narcotics for pain control are far LESS likely to show addictive behavior and are more compliant with their docs instructions. Most of us on narcotics are very thankful for the pain relief and wouldn't dream of doing anything to jeopardize that. Good luck and feel free to come here to vent anytime!
Topic: RE: Please Help, need advice
When I read this I was so angry for you! I cant believe that somebosy who loves you, and shouldnt want to see you in pain, would call you a junky. I, at 32, have severe dibilitating spinal osteoarthritis, and will be going to my PCP this Friday to discuss Fibro with him. My P.A. did alot of lbs and everything was normal, yet I am in pain all over, from the neck down. Every muscle, joint, and OMG my feet, hips, and elbows are the worst. People that are not in this amount of pain, just do not understand, and never will. There is such a terrible stigma in the medical field and in society of people that HAVE to take narcotics to function each day. I know from experience too. I havent worked since 2009, myself. Gosh, I can so relate to what you're going through. My family tries to be supportive, but there are "issues" about drugs too. I thought RNY would be my answer to start getting a life back, but now I think the surgery triggered this because it became full blown about 2 weeks after my surgery. Now I feel so disheartened. I am only 32 and have all these problems that somebody much older should be having. I am just not sure how I am going to live my life in even more pain than I was in before. I dont have any answers for you, but know that there is at least one person out here that feels you're pain. Thank you for posting this, because I feel better too. Good Luck with your VSG, losing weight does give me something to look forward to, as I'm sure it does with you too.
Topic: Please Help, need advice
I was diagnosed back around 1999 with fibro. I am a nurse, my husband an occupational therapist. I have fought so hard for so long to not let this get me down or stop me. I am in so much pain now, stiff, tired, foggy and swelling all over. I have broken down and called my doctor for an appointment tomorrow. I am not taking any meds at this time although I should be. During a time when I was under the care of pain management and on 10mg Hydrocodone and antidepressants I felt much better, but didn't care for some side effects. Also my husband hated the idea of me being on "drugs" of ANY kind, pain killers, antidepressants etc. He started to call me an addict and so I started to refused medication and just suffer. I think the suffering has mad it worse. I am so tired and in so much pain I finally want to cry. I don't work anymore and havent since 2008, I can't. I am appying for social sec disability at this time. My attorney says I am insane to not be on medication and allowing myself to suffer. I am afraid of asking for pain medication anymore cause I am affraid of being judged by doctors etc. I have, in the past, tried pretty much ALL the alternate medications for fibro by the way. I also have: spinal stenosis, sciatica, oesteo arthritis, herniated discs, anular tears to discs and scar tissue from spinal injections.
I am having surgery next week to have VSG done and am so thrilled about this. It is the one thing I have to give me hope right now.
Any one out gone through this?? Please help me find some answers.
I am having surgery next week to have VSG done and am so thrilled about this. It is the one thing I have to give me hope right now.
Any one out gone through this?? Please help me find some answers.
Topic: Happy April Fool's Day!!!
Good Morning Ladies,
Today is one of my all time favorite days out of the whole year! I can't help but walk around with a huge smile on my face. This is going to be the start of a fantastic weekend.
I sent hubby off to Northern Cal yesterday for his monthly service contract with UC Berkeley, the cute neighbor guy punk'd me this morning by putting a mylar balloon on my wipers that said "You were great last night" and my girlfriend and I are going to a Cirque preformance at Disney World this evening.
How about you all? What kind of plans to you have for the weekend. Spring is here or almost.
Shauna N
Today is one of my all time favorite days out of the whole year! I can't help but walk around with a huge smile on my face. This is going to be the start of a fantastic weekend.
I sent hubby off to Northern Cal yesterday for his monthly service contract with UC Berkeley, the cute neighbor guy punk'd me this morning by putting a mylar balloon on my wipers that said "You were great last night" and my girlfriend and I are going to a Cirque preformance at Disney World this evening.
How about you all? What kind of plans to you have for the weekend. Spring is here or almost.
Shauna N
Topic: RE: Out on Disability
I as well am in the same spot. All though I am only 33 and they are saying because I am so young it's going to be hard and they are right. I applyed for disablity and got denied and i got a laywer and I am fighting it. And yes 18 to 24 months for a hearing. My laywer did fill out paper work to ask for a early desion because I can hardly work at all. 15 hours a week is very hard for me and still got denied. This is probly the hardest thing i have had to go threw other than loosing weight.. good luck everyone on getting disablity it's very hard!
Topic: RE: Out on Disability
Are you using prescription D? That stuff is useless to us. It is D2 and we need D3 and it is oil based which we don't absorb well. This is the kind we need. http://www.vitalady.com/cgi-bin/commerce.cgi?preadd=action&k ey=1130X100
WLS 10/28/2002 Revision 7/23/2010
High Weight (2002) 240 Revision Weight (2010) 220 Current Weight 115.
Topic: RE: Vitamin E
What kind of D do you take? Is it D2 and in a gel cap? That kind is useless to us. I know the prescription kind won't work. We need dry D3. This is what I use. http://www.vitalady.com/cgi-bin/commerce.cgi?preadd=action&k ey=1130X100
They have it in 5,000 and 50,000. I was able to bring my level up from barely detectable to 72 using the D3 50,000.
They have it in 5,000 and 50,000. I was able to bring my level up from barely detectable to 72 using the D3 50,000.
WLS 10/28/2002 Revision 7/23/2010
High Weight (2002) 240 Revision Weight (2010) 220 Current Weight 115.
Topic: RE: Out on Disability
I am using Allsup right now.
They are a very good company to work with. They understand the fibro fog and the depression and really work hard to do all of the hard stuff for you.The weather change kicks my butt worse than anything. I found exercise in a warm pool is very helpful. The more you do the more you can do. Hang in there. Some days are an uphill battle, other days smooth sailing.
They are a very good company to work with. They understand the fibro fog and the depression and really work hard to do all of the hard stuff for you.The weather change kicks my butt worse than anything. I found exercise in a warm pool is very helpful. The more you do the more you can do. Hang in there. Some days are an uphill battle, other days smooth sailing.