Recent Posts
Topic: RE: How did Fibro affect your choice of surgery?
I'm glad you aren't considering the band it's a royal pain. I would choose the sleeve if it were me, for the reason you stated and because of the malabsorption issue. I think there are "some" issues with the sleeve also but there is alot more room to work with it than the RNY. Lots of meds come in different forms so they can often substitute. It's best to talk this over with your doc and your pharmacist, actually the pharmacist often knows more than the doc. Best of luck on whatever you choose.
Topic: How did Fibro affect your choice of surgery?
Hello,
I have just been approved and will be seeing the surgeon this week. I have the choice of three surgeries: RNY, LSG (the sleeve), or the Band.
I'm ruling the Band out because my skin (all of me) is so hyper-sensitive that even the thought of having a port freaks me out.
So now I'm trying to decide between the other two. I believe they are both excellent surgeries, but are you able to take needed medications with RNY? Right now I'm not on too much, but there's always the "let's try this one to see if it will help" from from my doctor and maybe one (or more) will help...
Please let me know your experiences. Thanks!
I have just been approved and will be seeing the surgeon this week. I have the choice of three surgeries: RNY, LSG (the sleeve), or the Band.
I'm ruling the Band out because my skin (all of me) is so hyper-sensitive that even the thought of having a port freaks me out.
So now I'm trying to decide between the other two. I believe they are both excellent surgeries, but are you able to take needed medications with RNY? Right now I'm not on too much, but there's always the "let's try this one to see if it will help" from from my doctor and maybe one (or more) will help...
Please let me know your experiences. Thanks!
Topic: RE: thanks all the veiwers (Now Fibro sisters)
I don't know if it would help your particular problem but I had a spinal stimulator put in and I'm now pretty much pain free in my lower back where my spine was degenerating. I'm just amazed at how well it worked and it's covered by insurance. I was able to test it for a week before it was permanently installed but it has been a God send! You might ask your pain people if they know about them. They can adjust it to lots of different parts of the spine and body. It just might help and can't hurt to try it. Until then gentle hugs.

Topic: thanks all the veiwers (Now Fibro sisters)

I have been thinking and hurting every where. Gee why do we have depression we are so tired and hurt every where!!!!
My neck is degenerated and has a lot of spurs and they cannot operate even if I wanted them to. So now when I turn it a little it hurts so bad a instictually yell ouch!! I try to be possitive but someday it will be done for and not move at all. Oh well another body part to deal with.......
I plan to check in here more often, hope you all will too.
Stay warm
Pam
My neck is degenerated and has a lot of spurs and they cannot operate even if I wanted them to. So now when I turn it a little it hurts so bad a instictually yell ouch!! I try to be possitive but someday it will be done for and not move at all. Oh well another body part to deal with.......
I plan to check in here more often, hope you all will too.
Stay warm
Pam

Topic: RE: Views who are ya all
I am Valery a lurker with FM also post RNY surgery..i pop in to read if anyone has found the "miracle" drug...
i just quit taking neurotin, because my memory loss was getting so bad...I take cymbalta, not sure if it works or not, bedtime is flexeril, tylenol with codeine for bad days, otherwise just xtra strength tylenol. since surgery i have become much more sensitive to many meds, ultrm used to be one i could take when at work and still function, since surgery i get the itchy crawlies from it, so now i just suffer in silence.
i just had a review at work, and per my supervisor my performance the past quarter is sub-par, so i have that stressinf me out, so guess what...flare up! i have always been honest with her about the FM, the fibro fog, meds etc...all that plus being just 4 months out from this surgery, i just feel she could be a bit more patient and understanding...yes i miss work from time to time, not nearly as much as i could, i make it to work, polite to co-workers, polite to customers (all while in pain) i have missed my "quota" of sales...now i fear i will get fired if i cant get the numbers up...i work for a communications company, so it involves frequent change...
anyone else have stuggles at work? problems with memory? problems with supervisors not understanding?
v.
i just quit taking neurotin, because my memory loss was getting so bad...I take cymbalta, not sure if it works or not, bedtime is flexeril, tylenol with codeine for bad days, otherwise just xtra strength tylenol. since surgery i have become much more sensitive to many meds, ultrm used to be one i could take when at work and still function, since surgery i get the itchy crawlies from it, so now i just suffer in silence.
i just had a review at work, and per my supervisor my performance the past quarter is sub-par, so i have that stressinf me out, so guess what...flare up! i have always been honest with her about the FM, the fibro fog, meds etc...all that plus being just 4 months out from this surgery, i just feel she could be a bit more patient and understanding...yes i miss work from time to time, not nearly as much as i could, i make it to work, polite to co-workers, polite to customers (all while in pain) i have missed my "quota" of sales...now i fear i will get fired if i cant get the numbers up...i work for a communications company, so it involves frequent change...
anyone else have stuggles at work? problems with memory? problems with supervisors not understanding?
v.
Topic: RE: Views who are ya all
Hi, don't know where to start. I don't know if I have fibro. My doctor suggested it but I really don't have a lot of pain. My main problem is terrible fatigue. I didn't realize how long I have had it but I saw on my online record that I was first seen for it in 2008. I thought it was 2009. Anyway, I have had every test there is to have. I had WLS in 2002 and it was a very malabsorptive procedure so after all the other tests were negative I blamed the surgery. I regained most of the weight I lost and I assumed, incorrectly, that if I were absorbing calories I was absorbing vitamins, too, so I wasn't very dilligent with supplements. I did have regular labwork but they never really did really a lot of labs. I was very low in D and my ferritin was 7 so I had an iron infusion but that didn't help. I got to the point that I went back to my original surgeon and begged for a reversal. I was also having problems with diarrhea, gas and bloating and was in pain from that every day. He agreed to do a revision to lengthen my common channel right away and also told me he would give me a pouch even though he said I might not lose any weight. At that point all I wanted was to feel better and not gain any more weight so I agreed.
I had the revision in July and while I have lost most of my excess weight I still have problems with fatigue. My doctors don't really seem to have any answers. They just tell me to get some exercise. I can barely walk to the kitchen and they want me to exercise. I was in tears the last time I went trying to get my doctor to understand how bad it is.
I do have some good days so that gives me hope but most of the time I spend at home trying to get the energy to take a shower. That is a big accomplishment for me. Last week felt good enough to get some laundry done and do some housework and visit some friends but the last few days I have been feeling terrible again.
I am afraid of being diagnosed with chronic fatigue syndrome because that just feels so hopeless. I really don't want to live this way. I have 4 beautiful grandbabies I want to spend time with but it is so hard because I am so tired all the time.
Right now I am taking Cymbalta and Wellbutrin. I don't feel terribly depressed. I mean I am depressed about not being able to function but I don't think depression is the cause of my fatigue. I am also going through menopause and i know that can cause fatigue,too.
I really wonder if my WLS didn't affect my immune system. About 6 or 7 years ago I had an auto immune disorder called SIBO, small intestine bacterial overgrowth, where the toxins from the bacteria caused reactive arthritis and a rash. I was treated for that and fully recovered but the fatigue I feel now is exactly like the fatigue I felt when I had that. I wonder if there isn't some residual affect from that.
Anyway, I don't know what my problem is. Lately I have been having more pain. I wake up aching all over. It kind of feels like you do when you have a flu. It might be because I have been trying to exercise. I got a XL Glider, which is like a Gazelle and I try to use it as much as I can. I managed to do it for 10 minutes in a row today. My doctors seem to think that if I just exercised I would have energy and I am so desperate to feel better I will try anything even though it feels like I am climbing a mountain.
I read all of your stories and it seems like you are all going through the same kind of things, if not with the pain then with the fatigue. I don't know how you can manage to go to work or even function. I have been on Social Security for a while because of depression and anxiety. I was working part time from home for about 8 years but I was laid off in 2009 and I don't see how I could possibly hold down a job now with the way I feel even though we are really struggling financially. It just makes me feel worse that I can't be productive and take care of my kids. I have 5 children, all grown except my 15 year old daughter. Her and my 19 year old live with me right now.
I had the revision in July and while I have lost most of my excess weight I still have problems with fatigue. My doctors don't really seem to have any answers. They just tell me to get some exercise. I can barely walk to the kitchen and they want me to exercise. I was in tears the last time I went trying to get my doctor to understand how bad it is.
I do have some good days so that gives me hope but most of the time I spend at home trying to get the energy to take a shower. That is a big accomplishment for me. Last week felt good enough to get some laundry done and do some housework and visit some friends but the last few days I have been feeling terrible again.
I am afraid of being diagnosed with chronic fatigue syndrome because that just feels so hopeless. I really don't want to live this way. I have 4 beautiful grandbabies I want to spend time with but it is so hard because I am so tired all the time.
Right now I am taking Cymbalta and Wellbutrin. I don't feel terribly depressed. I mean I am depressed about not being able to function but I don't think depression is the cause of my fatigue. I am also going through menopause and i know that can cause fatigue,too.
I really wonder if my WLS didn't affect my immune system. About 6 or 7 years ago I had an auto immune disorder called SIBO, small intestine bacterial overgrowth, where the toxins from the bacteria caused reactive arthritis and a rash. I was treated for that and fully recovered but the fatigue I feel now is exactly like the fatigue I felt when I had that. I wonder if there isn't some residual affect from that.
Anyway, I don't know what my problem is. Lately I have been having more pain. I wake up aching all over. It kind of feels like you do when you have a flu. It might be because I have been trying to exercise. I got a XL Glider, which is like a Gazelle and I try to use it as much as I can. I managed to do it for 10 minutes in a row today. My doctors seem to think that if I just exercised I would have energy and I am so desperate to feel better I will try anything even though it feels like I am climbing a mountain.
I read all of your stories and it seems like you are all going through the same kind of things, if not with the pain then with the fatigue. I don't know how you can manage to go to work or even function. I have been on Social Security for a while because of depression and anxiety. I was working part time from home for about 8 years but I was laid off in 2009 and I don't see how I could possibly hold down a job now with the way I feel even though we are really struggling financially. It just makes me feel worse that I can't be productive and take care of my kids. I have 5 children, all grown except my 15 year old daughter. Her and my 19 year old live with me right now.
WLS 10/28/2002 Revision 7/23/2010
High Weight (2002) 240 Revision Weight (2010) 220 Current Weight 115.
Topic: RE: lyrica ????
I used it for a little while but started gaining weight so switched to cymbalta which has worked better and no weight gain issues. I started very low dose but that's just the way my doc is. I quickly needed more until it wasn't doing much anymore and I switched to the cymbalta. There is another fibro drug savella if these don't work. Good luck!
Topic: RE: lyrica ????

Hi Sandra,
listen to your body. My doc tried me on that it caused such irregular heart beat I was not sure I would wake up the next morning. I guess because it affects nerve ending it can do that with the heart. Hope it works good for you.
Pam
listen to your body. My doc tried me on that it caused such irregular heart beat I was not sure I would wake up the next morning. I guess because it affects nerve ending it can do that with the heart. Hope it works good for you.
Pam

Topic: lyrica ????
How long did it take for the lyrica work for you ? I just started it yesterday, and my dr. started me out on 150 mg 1pill two times a day. But a lot of people have said that is kinda high to start out with. Has anyone also started out on the max dose?
thanks
sandra
thanks
sandra
Topic: RE: Sleep mask
So far I've had no Joint problems requiring replacement. But with every ache and pain that this fibro has brought me... First only my legs and hips but now I've worked my way up my body to my neck pretty soon it will include my face and ears LOL 24/7 always with pain and with my severe memory problems I'm only able to take Tylenol with my regular meds. So I try to stay distracted as much as possible. Good grief when I have a toothache I can't even tell from which tooth it's coming, drives my dentists crazy LOL. I hope things go well for you and really look at those future surgeries... I know it's a headache but will your QUALITY OF LIFE improve?
My mom needs surgery on her knee and she's balking. She's always been an active person, here there and everywhere and it's pretty much stopped now. She truely would be happy to be back out doing things. I know I wish SHE would. Talk to your children and see what they think and maybe a second opinion from a different doctor too.
Thanks for being there
My mom needs surgery on her knee and she's balking. She's always been an active person, here there and everywhere and it's pretty much stopped now. She truely would be happy to be back out doing things. I know I wish SHE would. Talk to your children and see what they think and maybe a second opinion from a different doctor too.
Thanks for being there