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Topic: RE: New to FMS and Feeling So Overwhelmed
Unfortunately your sister's reaction is what many if not most people are going think. There are still many docs that don't believe it exists. First I would strongly urge you to find and attend a support group, in a city the size of Seattle there should be several. I would also urge you to see either a rheumatologist or pain clinc to get medication for the fibro, there are several new ones that are quite effective. The down side is that we are all so different and require different treatments, what works for one doesn't neccesarily work for another.
I tend to disagree with your doc tho because any WLS trauma is only temporary and would certainly help your joints. If you had cancer would they say no surgery? I would at least get a second opinion. I'm not trying to push WLS cause I'm very unhappy with my choice, so that isn't my what I'm about, I just don't think your doc sounds like they are very well informed about fibro itself and another opinion might give you more help. If you have any particular questions feel free to PM me or ask here and you'll get our years of experience and not neccesarily medically approved advice.
It also sounds like you may be suffering from depression and really who wouldn't when they have fibro. That's why many of the fibro meds are also anti depressant in nature. I didn't even realize I was depressed until I started my Cymbalta for fibro pain and wow all of a sudden my mood improved so much that even my hubby commented on it! So please check that out too, just getting that under control can help you deal better with the fibro. Most of us have to just make a choice whether we are going to let the fibro take us down or whether we are gonna fight it every step of the way, attitude is everything when dealing with this awful disease! We have to accept the FACT that this disease is not curable and it is for the rest of our lives. We can either crawl into bed and stay there or keep going even when we don't want to. We have to learn when some days are just too bad and we need to rest and when we can we catch up with things later, it's a balancing act that we learn over time. So get on the internet and learn as much as you can about the disease while remembering not everything on the net is factual. Here are a couple of books I got that were very informative, Fibromyalgia the First Year and Fibromyalgia and Chronic Muscle Pain. Good luck and feel free to come here any time you need our help, we're a pretty good bunch!
I tend to disagree with your doc tho because any WLS trauma is only temporary and would certainly help your joints. If you had cancer would they say no surgery? I would at least get a second opinion. I'm not trying to push WLS cause I'm very unhappy with my choice, so that isn't my what I'm about, I just don't think your doc sounds like they are very well informed about fibro itself and another opinion might give you more help. If you have any particular questions feel free to PM me or ask here and you'll get our years of experience and not neccesarily medically approved advice.
It also sounds like you may be suffering from depression and really who wouldn't when they have fibro. That's why many of the fibro meds are also anti depressant in nature. I didn't even realize I was depressed until I started my Cymbalta for fibro pain and wow all of a sudden my mood improved so much that even my hubby commented on it! So please check that out too, just getting that under control can help you deal better with the fibro. Most of us have to just make a choice whether we are going to let the fibro take us down or whether we are gonna fight it every step of the way, attitude is everything when dealing with this awful disease! We have to accept the FACT that this disease is not curable and it is for the rest of our lives. We can either crawl into bed and stay there or keep going even when we don't want to. We have to learn when some days are just too bad and we need to rest and when we can we catch up with things later, it's a balancing act that we learn over time. So get on the internet and learn as much as you can about the disease while remembering not everything on the net is factual. Here are a couple of books I got that were very informative, Fibromyalgia the First Year and Fibromyalgia and Chronic Muscle Pain. Good luck and feel free to come here any time you need our help, we're a pretty good bunch!
Topic: New to FMS and Feeling So Overwhelmed
I was just diagnosed three weeks ago with FMS. I have spent so much time crying out of frustration, depression and pain. I tried to share the info with my sister who I consider my best friend and she essentially believes it is all in my head and all due to my weight. I admit some of my health problems (knee pain, back pain) are due to my weight but she doesn't understand how different this feels. She is also upset because I won't get WLS and it is because it is not safe for me. I have severe food allergies (anaphalaxis) and with the FMS the doctor has said too much trauma has already occurred to my body and it would only make me sicker.
I don't know what to do. I'm hurt by my sister's reaction. She had WLS and it was good for her but there is no fix for me but hard work and diet and exercise. I can't tell many people at work because I have a boss who is obsessed with homeopathic treatments and while they are right for her they are not right for me but she tends to shove them to the point of stalking and she would think this is an excuse or in my head. The depression and pain has become so bad that I don't do anything or go anywhere anymore and spend most of my weekends and evenings in bed hurting physically and emotionally.
How do you all cope with this? Does it ever get better and do people every understand that it is real and not in your head?
I don't know what to do. I'm hurt by my sister's reaction. She had WLS and it was good for her but there is no fix for me but hard work and diet and exercise. I can't tell many people at work because I have a boss who is obsessed with homeopathic treatments and while they are right for her they are not right for me but she tends to shove them to the point of stalking and she would think this is an excuse or in my head. The depression and pain has become so bad that I don't do anything or go anywhere anymore and spend most of my weekends and evenings in bed hurting physically and emotionally.
How do you all cope with this? Does it ever get better and do people every understand that it is real and not in your head?
There are those that are great and those that have greatness thrust upon them, which are you?
Topic: RE: New here
Well I'm no help as far as how you absorb the meds because I have a lap band. You may need to take the dose more often and divide it up during the day. I took gaba and wasn't told to take it at any particular time, I took mine in the morning. Couldn't use it after the band because the pill was too big. I then tried Lyrica and didn't care for the weight gain it caused. I'm now on Cymbalta and that seems to work well, the warnings scared me to death at first too. I told my husband to keep a close watch on me in case I did have any suicidal thoughts but never did. I think that tends to happen more with very young folks and teens. I didn't have weight gain with it, in fact it acted more like speed on me, which my doc said was unusual because most folks get sleepy. I've found with all these that I've tried that any side effects only lasted a few days. All that said, the meds that work best are narcotics. I take 30 mg of time release morphine 2x a day and 5 mg. oxycodone every 6-8 hours and I think they are what's helping the most. There are also lots of times when nothing helps and you just get thru the day as best you can. If I can help with anything please feel free to PM me.
Topic: RE: New here
Hi,
I am also new to this web site and I am schedule for RNY on April 1st 2010. I have been dealing with fybromialgya for the past 6 years... I have tried every medication there is for fybromialgya and the only ones that have work good for me is lyrica and cymbalta.... I am now not using the cymbalta but I am still on lyrica and it works... I had try gabapentin but it gave me really bad nightmares. The cymbalta was the best I had used but it does cause weight gain and heat flashes and sweats.... Now I am having my RNY on April and I am not sure if my doctor is going to keep me on it or what is going to happened.. because as far as I know we need to take chewable medication.. Anyway, when did you go through surgery? and what was the worst part of it? I hope this help and if you have any other question regarding Fybromialgya let me know...
diana
I am also new to this web site and I am schedule for RNY on April 1st 2010. I have been dealing with fybromialgya for the past 6 years... I have tried every medication there is for fybromialgya and the only ones that have work good for me is lyrica and cymbalta.... I am now not using the cymbalta but I am still on lyrica and it works... I had try gabapentin but it gave me really bad nightmares. The cymbalta was the best I had used but it does cause weight gain and heat flashes and sweats.... Now I am having my RNY on April and I am not sure if my doctor is going to keep me on it or what is going to happened.. because as far as I know we need to take chewable medication.. Anyway, when did you go through surgery? and what was the worst part of it? I hope this help and if you have any other question regarding Fybromialgya let me know...
diana
Topic: RE: New here
I was also on that before my doc said that it was to be taken at night to help me sleep as it can cause sleepiness
I no longer take it, I was on it for just over 2 yrs
Hope that this helps
M
I no longer take it, I was on it for just over 2 yrs
Hope that this helps
M
Topic: New here
Hello all. I figure that I've gotten so much information for my RNY on the other forum that now that I have just been diagnosed with fibro that this forum may be of help to me also. My name is Jennifer, I am 39 years old with 4 boys and a wonderful husband. I had RNY on 10/17/2008 and so far have lost 112 lbs. It has taken a while but I was finally diagnosed with this and was prescribed gabapentin (neurontin) for this. My doc has me on 300mg for 3 days, then 600mgs for 3 days and then 900 mgs until I go and see her next month.
I am just concerned that she has me taking the dosing ALL before bedtime. Nothing during the day. I was wondering if anyone else has this scheduling for their doses and if it lasts all day doing it this way.
Also if anyone has any side effects or takes anything else with their gabapentin. I am new to this but I am trying to research as much as possible. I have read a lot about Lyrica also. One thing that I am nervous about are all the posts that I have read about weight gain, fogginess, memory loss and suicidal thoughts.
Can anyone share their experiences with me. The last thing is the way we absorb meds, I am not sure that this is the best way to take this medicine...all at once.
Thanks.
I am just concerned that she has me taking the dosing ALL before bedtime. Nothing during the day. I was wondering if anyone else has this scheduling for their doses and if it lasts all day doing it this way.
Also if anyone has any side effects or takes anything else with their gabapentin. I am new to this but I am trying to research as much as possible. I have read a lot about Lyrica also. One thing that I am nervous about are all the posts that I have read about weight gain, fogginess, memory loss and suicidal thoughts.
Can anyone share their experiences with me. The last thing is the way we absorb meds, I am not sure that this is the best way to take this medicine...all at once.
Thanks.
Jennifer Louise
236/112/goal 125
236/112/goal 125
Topic: RE: Feeling over whelmed
Hi Granmmy!
I had RNY Sept 26, 2006.I started at 470 and went clear down to 303, then up to 339 and that is what I have stayed at since. I want to try and get below 300 but I just cannot do exercise, much.
Topic: RE: Feeling over whelmed
Soooo sorry to hear all that you are going thru, venting is always helpful so vent away. I'm new to these boards but it seems very important to have friends in OH that are going thru the same problems. Do not give up because you do have an angel on your side & God will give you the strength to carry on.
I too suffer with Fibro and some days are so very painful that you do not see the light at the end of the tunnel. I would like to know what WLS have you had if you do not mind me asking...... I'm looking into the DS surgery, but I'm having second thoughts.
I will keep you in my prayer!
Granmmy54
I too suffer with Fibro and some days are so very painful that you do not see the light at the end of the tunnel. I would like to know what WLS have you had if you do not mind me asking...... I'm looking into the DS surgery, but I'm having second thoughts.
I will keep you in my prayer!
Granmmy54
Topic: RE: Feeling over whelmed
DORTHE
AGING IS INEVITABLE
GROWING UP IS OPTIONAL!
Hi Pam:
Please don't apologize for venting. That's one of the better things about being able to come here. We know we can vent, be heard, not judged, and feel better.
My thoughts and prayers are with you sweetie. Sounds as though you've been through a whole lot - most of us here have. And I, too, sometimes wonder about giving up yet know I cannot do that either.
Hope things start to turn around for you soon.
Take care
Dorthe
Please don't apologize for venting. That's one of the better things about being able to come here. We know we can vent, be heard, not judged, and feel better.
My thoughts and prayers are with you sweetie. Sounds as though you've been through a whole lot - most of us here have. And I, too, sometimes wonder about giving up yet know I cannot do that either.
Hope things start to turn around for you soon.
Take care
Dorthe
DORTHEAGING IS INEVITABLE
GROWING UP IS OPTIONAL!
Topic: RE: New Doc
That's a shame, you would certainly expect her to have a bettert understanding of the absorption issue. Keep looking there has to be a good doc out there somewhere for you!
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