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You sorta figure it out as you go along, and nothings ever absolute... you never really get to a pain free place, more like a somewhat controlled state. My advice, Sleep alot like 12 hrs.. I know it seems like alot but with FMS you need the extra time to get your body to recoup. Sleep is so key to controll.. stress... try to keep it under controll because that causes flares... Ho****er, like hot hot showers are known to help with flares. Right now Im taking a combo of tramadol and
Seroquel and Welbutrine, Because everyone with FMS has issue, depression and anxiety caused by the pain. Find your self a good pain doc, one who doesn't look confused when you tell him you have FMS. And move, the more you sit still the more the pain will creep into your bones.. Pay attention to how you sleep, some times the postion your sleeping in can cause upper back pain between the shoulder blades in FMS people. Be carefull with Cymbalta, It suddenly stops working, and when you come off it you go through a week long withdraw syndrome... not pleasant... Most FMS docs willl recomend tramadol, it's the kinda drug you need to give a chance because you body needs to get used to it, when you first start taking it's really sedating. The seroquel is awesome because it really puts you to sleep and makes you get a dedicated 12 hrs. The welbutrine is preety good because it has the added weight loss and then it helps ward off the depression. Have you tried the lidocane infustion?? I would love to try it but im illergic to lidocane... I heard you have to get the treatment frequently but it totally kills the pain... worth a shot right??
I can relate to all your suffering. I just don't think every doctor understands (or cares). I don't think mine does. She changes the subject back to my blood pressure, my depression. I just want to get rid of this fatigue. I did have low vitamin-D level, but it doesn't seem to every come up to normal. I think I'll try to find a speciliast. Maybe a chiropractor could help.
I hope things get better soon!

I MY RNY 5-5-09
Life is Good


I MY RNY 5-5-09
Life is Good
Before I was diagnosed I had all kinds of witty retorts and comebacks but the fibro fog has done something to me. After years of swimming in it I only think of things I SHOULD have said later in the day (some times week).
Wish I could be of more help - just know you aren't alone.
With the Lyrica & pain meds it is really hard to lose any weigh. I guess I will have to just stop eating to get myself back in contol.
I just wanted to wish you the very best. I am turning 61 yrs old this year and I don't look or feel 60, but here I am. My weigh started off at 273 & I am not 230, but should be down a lot more.
Just wanted to let you know that you are not alone "At ALL"
