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lightswitch
on 8/18/16 5:23 am
Topic: Thursday

Yesterday afternoon, I got a piece of bad news.  My neurologists is retiring; he has been my doctor since the drunk driver broke my back in two places and cracked my neck vertebrae in the early 90s.  He and his partner both showed up in the ER that early morning and both assured me I was going to be fine but, I found out later, he told my sister that if they could keep me alive through the hours of surgery, I would never walk again.  I've seen this doctor every year since then.  He is also the doctor who called me a few years back and said he was looking at my MRI results and wanted to send me to a colleague, who diagnosed me with MS.  So, he is retiring and a few months ago, my rheumatologists told me that he was retiring. I will be seeing my new rheumatologists next month and my new neurologists in November. Even though I only see these doctors every year or in the case of the rheumatologists every six months, they have been a part of my life for over two decades....damnit.  I retired; why would I not want my doctors to retire. LOL

I am spending the day getting more organization to my organization, and I am proofreading/editing the article that I wrote for one of our local WLS surgeons.  He and I met a few months ago at an MS fundraiser.  When he was introduced to me, I told him that I had had WLS and told him when and he looked a little shocked. He said, wow, you've done amazingly well. Of course, I said, maintaining hasn't been easy.  We continued to talk and he said he would like to know what I was doing and would I come talk to his support group and so I did both. Then, he and I had lunch a few weeks later and he mentioned that all the research pointed toward weight gain relating to mental issues and he said he would love to do research but had no time, so I offered to do it for him...I was somewhat shocked at what I have learned. He is using the article to prepare for a seminar he is giving...I will probably help him put his powerpoint presentation together too.  Originally, I saw this as a collaboration but he has offered little towards the article other than giving me access to his only medical library membership, and since I am putting his presentation together too for the seminar with no contribution from him, this is more like me doing it all. In the beginning, he told me he would pay me for the research so I guess we will go that route. Anyway, I am taking some of the information and will be using it to do some little "for our information" segments.  But, in all the research that I have done, and I have done a lot, I have found nothing that contributes weight gain to a faulty pouch....that sort of shocked me.  

Well, today, DH is working from home. He is working on something that requires no interruptions and when he is in his office at work, he gets interrupted all day long...so, when he does certain conversions or whatever, he does it at home....I have to be quiet. Crap. 

Breakfast: I egg cooked in a dab of olive oil and one toast

Snack: watermelon

Lunch: Potato soup.  

Snack: carrots (my daughter's carrots have produced tons this year so I will be eating them often)

Dinner: Beans, loaded cornbread, fried okra/squash/greentomatoes (I have a little of each and will fry all of it)

Snack: watermelons and I hope we eat it all today. 

Ladies, consider your food today, plan it, and follow the plan.  Get out and enjoy the summer heat because from all I've read, we are going to have a cold and snowy winter. 

 

 

seasheleyes
on 8/17/16 7:47 pm - Manteca, CA
Topic: RE: Wednesday Talk (whoops wrong day)

I agree Linda. She hasn't been assertive so far. I have offered to call for her r write e mails but so far she hasn't accepted that offer.

seasheleyes
on 8/17/16 7:45 pm - Manteca, CA
Topic: RE: Wednesday Talk (whoops wrong day)

Thanks Jeannie. In CA they just passed the euthanasia law. If my friend gets too tired she can decide on that. I think it is a really good law that can help people that are suffering. I can already see Linda's life dwindling, it's like a drip at a time, but within a month or two the loss is big. I'm already brainstorming about things that she can access to keep her brain occupied. I can see her breathing starting to change. She said it is allergies...I don't think so. Her speech is labored now and she is over articulating to be understood. I know that swallowing will be affected before too long...it is difficult to watch and I just can't imagine being in her place.

Eileen Briesch
on 8/17/16 5:31 pm - Evansville, IN
Topic: My journalism journey, part 12

Wally and Margie Mundstock liked to explore the back roads, and they got me involved in that from the start. The second weekend I was there, they took me up in "Burby," their Suburban, along with Puff, their dog, who came everywhere with them, up into the mountains of Lost Creek State Park near Anaconda. The roads weren't great (well, I was from the Chicago area; I was used to the paved roads with potholes. Most of these roads weren't paved, and some were just snowmobile trails). But Burby could go everywhere, and so we went.
Along the way, there were some wild irises, and Margie wanted some for her garden. I don't know how legal it was to dig irises out of state park land, but we stopped to do just that. (Margie and Wally are dead now, so there can be no repercussions.) Puff stayed near; Margie made sure she didn't run off. She was a toy poodle and was older than even the Mundstocks' youngest daughter, JoNae.
From that first outing, I gained a love of exploring. I tried to get out at least once a week to go up in the mountains, try a new road, go a little higher, a little farther, and see something new. I had a Forest Service map to guide me. Sometimes it helped, sometimes ... well, I just got lost. I had no GPS, just that map and my own good sense. I always found my way home somehow.
One day I went up the mountain and came out the other side into Dillon. Don't ask me how I got there; I don't remember anymore. It was a beautiful drive and it was late spring, in May. There was still snow on the road in some places. Once I got to Dillon, I knew where I was and headed back on the interstate.
I had enjoyed fishing when I was younger and had a fishing pole and tackle box, so one weekend I bought some worms and looked for a lake at which to fish. I was not quite fishing like those in "A River Runs Through it." I was sitting there, feeding the baby fish, casting and sitting enjoying the sun when someone came behind me and touched me on my shoulder.
I almost jumped into the lake. There was Wally, laughing. I couldn't believe he went to the same lake as I did for the afternoon.
I loved going up to this place called Crystal Park. We traveled up through the Big Hole and then up a road that was little more than a snowmobile road. Along the way were big meadows of wildflowers. Occasionally, I'd see a moose or elk or deer. One time, there was a mama moose with her baby.
When we arrived at the park, there was a picnic area and then a large mountain with a big hole where all the big crystals were. Ray would go up the mountain to dig; I'd stay at the bottom and dig around the bottom because my legs didn't like climbing. I still have some crystals from there: amethysts and quartzes.
One of my favorite places to drive to was the Skalkaho Pass. It was only open when the snow melted, and that could be as late as June sometimes. It was high up in the Pintlar Mountains and at some points only a single car could pass. But when you got up to the top, a beautiful waterfall awaited the driver.
And what a waterfall it was during a season when the snowmelt was plentiful. The first time I saw it was during a drought and the runoff was low, but it was still breathtaking. But the next time ... well, that was another matter.
It was right before I was going to leave for South Dakota and my next job. I took my little brother, Ray, up with me. We wandered around many places along the road, including one place I had never seen before. On my Forest Service map, it's called the Frog Pond. I'm not sure why; we didn't see any frogs. The other times when I was there when there was a drought, I didn't see the area. I guess the recent heavy snow melt had made it more verdant.
We left that area and continued up to the top to the waterfall. The water was gushing down the side of the mountain and over the road, so much more than it had the other times I had been there. We pulled over and took photos, and Ray walked around the rocks, enjoying the water coming down.
I always remember that outing, for how green and lush Montana could be at times; contrasted with how brittle and brown it had been sometimes. The previous fall, we had wildfires in Yellowstone, with the smoke blowing over the passes into our valley. When the kids played football that fall, the smoke hung over the stadium like an unhealthy cloud.
There were so many wonderful places to explore in Montana: the Bitterroots, Glacier Park, Lost Creek, Georgetown Lake, and Yellowstone River. In five years, I got to see a lot of it, but not as much as I wanted.
But the beauty of the Frog Pond has stayed with me all these years, as some place I want to return to someday, to sit and stay and remember the glories of Big Sky Country.

Eileen Briesch

lap rny 6-29-04

[email protected]

 

 

    

(deactivated member)
on 8/17/16 4:55 pm
Topic: RE: Wednesday Talk (whoops wrong day)

Hi ladies

After yesterday's trip to Yellowstone I stayed pretty quiet today.  The landlord's 3 sons washed my car and vacuumed John's truck late this morning.  I cooked lunch then went to Walmart to get some fresh veggies and stuff.  I am so glad there are kids  living in front of me.  I love bananas  but with all the trips we are taking some of them get overripe.  I get to make banana bread and give most of it away.  The boys love it and I don't over eat it. win win.  Tonight we are going to a play.

Breakfast - oatmeal with blueberries and bananas

lunch - pasta with tomato sauce

snack - grapes

dinner - green beans, beets, and a baked sweet potato

 

Julia and Jeannie - My pastor from my childhood died with ALS.  It is a horrible disease.  Julia hope you friend gets the help she needs.

 

 

Nancy B
on 8/17/16 3:20 pm - Niagara-on-the-Lake, Canada
Topic: RE: My journalism journey part 11

Dear Eileen..

I am SO enjoying your stories...imagine all of the lives that you have affected

in such a positive way!

Don't EVER forget that! *hugs*

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Nancy B
on 8/17/16 3:17 pm - Niagara-on-the-Lake, Canada
Topic: RE: Wednesday Talk (whoops wrong day)

Hello, everyone:

My life has been rather strange lately. I have A LOT of artwork to do but I have reached a high pain phase...they usually last about ten days..I am on day 8...and I just do not feel like doing anything. I am so disappointed in myself for being so non-productive while I have so many jobs that must be done and I now have yet another client for a children's book so I have to get an attitude adjustment really soon...when I get like this, I tend to isolate, including not posting.

Having said all of that, EATING is NOT an issue. I have to laugh about this..so ironic having been an emotional eater all of my life.Instead, I struggle to eat enough. I have to gather up my craft supplies as little Kaylee (10) has asked for a CRAFT DAY...so we are making SUN CATCHERS with glass globs of many colours and perhaps Kristen who just turned 14, might prefer to cover glass jars with the glass globs to hold her drawing pens. Either way, we will have a nice afternoon and Jen (their mother) gets to have a quiet timeout or a nap.

Before I drive there, I have to stop in next door where my son Derek lives and drop off some colouring books and a cheesecake. He has a lady and her two teen daughters visiting for the afternoon...they are visiting from ENGLAND  and Rachel (the mother) and Derek are old facebook friends for many years. Derek is BBQ'ing their lunch so I am providing a chocolate caramel cheesecake....funny how I have NO craving for it at all. In fact, I find that most desserts are so SWEET that they make me nauseous. WHODDA ever thunk it!?

My weight still wavers over five pounds- naturally affected when I cannot take my water retention pills for my legs when I have to go out. I look forward to seeing my SLEEP doctor (annual appointment since I still use my C-Pap) because I have lost over 40 pounds in the last year! He will be SO surprised!

My family doctor didn't really notice last week (after three months****il I lifted my top to show him my waist...THEN he just grinned and shouted WOW! I still tend to wear roomy clothes...everything is too big now...again..after I bought all new clothes over the Spring. Today I took in a pair of knit pants...six inches off the waist!  I just wish that I could see the difference...I need new eyes or a new brain....lolol.

Wed.Breakfast: hot chocolate protein drink

Snack: yogurt cup

Lunch: hard cheddar and one hard cooked egg

Snack: peach

Dinner: small piece of diced steak, cooked beets and steamed bok choy

Bedtime snack: fresh pineapple

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lightswitch
on 8/17/16 11:32 am, edited 8/17/16 4:33 am
Topic: RE: Wednesday Talk (whoops wrong day)

Julia,

Back in the mid eighties, I had a friend whose husband had ALS and he was diagnosed with ALS a month after my friend was diagnosed with inoperable brain cancer. They were in their mid 30s, a little older than I, at the time, had no children, and the only family they had was their friends. He worked for the railroad, so they had excellent insurance, so another friend and I began managing their home health care. We were able to keep round the clock nurses for both of them and physical therapist came and we were able to get a van equipped to lift their wheel chairs up and down so that we could take them back and forth to the doctors. The wife died first.  Her nurse called me and said her end was nearing and since I had no one to watch my children, (toddlers), I took them with me and put them on the sofa to sleep, thankfully they did, and I made her nurse move her hospital bed next to his and I put their hands close and he sort of held her hand while she died. After her death, he lived six more years and maxed out his insurance but another friend, who was his friend (I was her friend), also worked for the railroad and she married him so that he could immediately get her insurance benefits and thus began his final stages of ALS.  He eventually was unable to move anything but his eyebrows and he had a trach connected to a ventilator, a tube feeding coming out of his stomach in which the nurses gave him feedings, water, and medication.  The night he died, he had appealed to a court to allow him to end his life or take away the feedings and respirator.  Finally, a judge granted permission to remove all life support and we all gathered.  He clicked and raised his eyebrows and tears flowed down from his eyes past his ears and onto the bed and he lasted six minutes. He had very loyal nurses, friends, and doctors over those years but he knew there was no cure and he was so tired of fighting. I hope your friend's suffering doesn't last as long because it can be pretty bad.   You are a good friend. 

seasheleyes
on 8/17/16 8:35 am - Manteca, CA
Topic: RE: Wednesday Talk (whoops wrong day)

Good Morning to you Jeannie and those to come. I am so grateful for your loyalty to this group Jeannie. I too wish more of the lurkers would post. I have found that this new and improved format really helps me stay focused and I have lost ten pounds since we started doing this. I like hearing the newsy stuff plus I truly get ideas from some of your food lists. I am more accountable when I post and I feel supported when I fail. 

I'm having a pedicure and threading today. Yesterday I spent the day with my friend that has ALS. We got a lot done...forms filled out and mailed, financial details listed, a wish list for adaptive medical supplies completed. I am trying to get her to push for having physical and occupational therapy provided in her home. Her mobility is poor and the effort involved to get to appointments wear her out. Plus I think it is better to work on making her environment work for her as long as that's possible. She knows that eventually she will have to go to a nursing home. I think that maybe she can stay in her home with adaptation. But the professionals need to evaluate this and give us clues on keeping her home as long as is possible. The day was fulfilling for me but emotionally draining. 

Breakfast- protein drink

Lunch- cheese, a couple of crackers, apple slices, cranberries 

Dinner- beef stew, salad.

Snacks- nuts, cheese, cranberries

lightswitch
on 8/17/16 6:43 am, edited 8/17/16 6:44 am
Topic: Wednesday Talk (whoops wrong day)

Ladies,

Just so you know, it's okay to post on the daily thread. I know some of you are busy and others have been on vacation, but in order for our board to thrive, we all have to contribute. While I enjoy reading various types of posts, I think a comment here and there on the daily thread or even starting the thread would be nice.

Glad to get that off my chest.  Today, I am canning some jalapeños. I don't eat the peppers, but I sure do use them to add a little flavor to various dishes.  My daughter's garden was very successful this year and the peppers just keep right on growing as does the okra so I am pickling and canning every few days.  I freeze the okra or make pickled okra. 

Well, the real-estate agent contacted us last night and said that the seller is coming down to our offer, which wasn't really a counter offer since she countered and we stayed quiet and she just kept coming down.  I contacted my retirement folks and they said when I am ready, they will start putting money in my savings so that we can buy the house and pay for renovations.  I am so happy that when I set up my retirement, I had the maximum amount taken out of my check that the university would match at a 100% and then I added a couple of hundred extra so the money piled up quickly and the investment officer was wise in investing and now I am okay.  Yeah...The man who is going to help with the cabinets and I talked yesterday and he drew the cabinets out and I loved it.  He utilized every inch of space in that kitchen and I am going to have a ton of counter space and storage. This is the first time that I have actually designed my cabinets and I am designing on how I use my kitchen and what needs to be stored.  I'm also working on my craft room.  I cannot wait to get all my stuff back in order so I can start quilting again....

Okay, today I am packing some things and, of course, canning.  I'm also going through our clothes and tossing **** we don't wear.  My husband will never throw away anything. He has suits that he hasn't worn in twenty years so today, I am getting them ready for the salvation army, those that can be worn. 

Breakfast: loaded oatmeal

Lunch: vegetables and shrimp

Dinner: potato soup....

Snacks will be watermelon of which I am tiring.  My daughter has had an abundance of watermelons....

Ladies, rock on and please post. We all need support and your words may be the one thing that keeps me or one of the others on track....

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