Lisa Friday
Diagnosed with Cushings Syndrome on day 19 Post-Op
Nov 14, 2009
Well, I have been dying for a Doctor to finally acknowledge what I have KNOWN for 4 yrs... YES, Lisa, you DO have Cushings Syndrome...the very rare disease that we kept testing your urine for for years... YES, Lisa, the blood test that you insisted we give you did come back highly positive, so high that we thought the lab performed the test incorrectly and made you re-take it with our highly sophisticated lab that never makes mistakes and it, too, has come back identical to the first- Highly Positive!So, Lisa, now what?
Well, they now have to do research on my levels to decide if they think the tumor is on my pituitary or adrenal gland... then, they do imaging on the gland to see if it is operable. If so, removal. If not, medication?
Great! Another surgery... Number 6 in 5 years?
OMG, the real kicker here for me at now, 23 days Post-Op is the fact that once the tumor is either removed or suppressed with meds, my weight should just fall off and I should be my post back surgery self again...
I have been 'sick' since I left her office.
Well, no, I have been in absolute denial... I immediately left her office and began and 8 hours later had almost finished all of my Christmas shopping. Needless to say it was a VERY expensive and exhausting day... but, 'retail therapy' must have been what I needed, because since then, I have now completely decorated my house's entire interior (not my porches or doors, because I think my neighbors would think I had lost my mind for decorating for Christmas on Nov. 14th) and wrapped all of those presents that I purchased on Wed the 11th!!!
The worst part of this, is that I have permanently changed my anatomy. I am just shocked that I finally got my diagnosis and because every Dr. I have seen over the past 4 yrs has told me Cushings was entirely too rare for me to have it... They told me if I would just lose the weight, that every symptom would go away slowly, and I would be back to normal (if I would just lose the weight). Well, when you have Cushings, the tumor produced sooo much cortisol, that it is nearly impossible to lose weight.
In fact, I wonder if that is why I have only lost one lb in the past ten days. From day 12 to day 22, I have only lost one pound... That, by the way, is incredibly frustrating and very depressing.
Well, thanks for reading my rant. I will deal with this on a day by day basis...I wonder what other huge projects I will accomplish while I am recovering from this shocking news?
Tune in next time and see what amazing 'feats' I have overcome...
Take care and God Bless you ALL...Lisa
0 Comments
About Me
AL
Location
20.5
BMI
Surgery
10/23/2009
Surgery Date
Oct 16, 2009
Member Since
