Recent Posts
Topic: RE: what a week end
Man family can drive ya nuts sometimes. Can't live with 'em, can't kill 'em! Take care and slow deep breaths!

Topic: what a week end

I just need to vent. I have a big family and everyone is fighting this week end and I feel like crap.......
But it does seem small compaired to Japan's problems.
But I will take some gentle hugs....
Pam
But it does seem small compaired to Japan's problems.
But I will take some gentle hugs....
Pam

Topic: RE: Do I have fibro?
Thanks everyone,
I just found out my vitamin D level is really low. I'm on a mega vit D now and when my levels are normal I'll re-assess the situation.
Thanks!
I just found out my vitamin D level is really low. I'm on a mega vit D now and when my levels are normal I'll re-assess the situation.
Thanks!
Topic: RE: Do I have fibro?
I just went to the Dr with similar complaints, in addition to a kidney infection.
For the pain issues, which I prefaced with I wanted to know what I could do about it...not medication... She said to cut all asparatane and MSG. I thought I had, but it was in my meat tenderizer. The only meat tenderizer I could find that does not have it is Lawry's brand. Just FYI, Denise
For the pain issues, which I prefaced with I wanted to know what I could do about it...not medication... She said to cut all asparatane and MSG. I thought I had, but it was in my meat tenderizer. The only meat tenderizer I could find that does not have it is Lawry's brand. Just FYI, Denise
Topic: RE: In a flare - question on odd lumpy area
Update:
Apparently I have a strained muscle, which is pretty cool in a way because I actually did enough to be able to strain it (if you know what I mean).
Thanks again for the good thoughts. :)
Apparently I have a strained muscle, which is pretty cool in a way because I actually did enough to be able to strain it (if you know what I mean).
Thanks again for the good thoughts. :)
Topic: RE: Do I have fibro?
The tender points are listed on the web... You can sort of test yourself. Have to have 11 of 18 for diagnosis of FMS.
Topic: RE: New to firomyalgia
I was diagnosed 14 years ago. The things that have helped me the most are heat, TENS unit and exercise. I also take cider vinegar daily to cleanse my body of toxins. Sorry for this dx, but at least you have a dx! Better than not knowing!

Topic: RE: New to firomyalgia
I was diagnosed with Fibro in 05 after being downtrodden by super flare up since 2002.
I have been on more than several FDA approved fibro treatments that did little more than make me feel crazy.
It isn't an easy path to be on and I'm with you - I don't want to be hopped up on pain meds all of my life.
These may not work for you but this is what helps me.
Hot Hands heating pads ( find them in the sporting goods section at Walmart [email protected] vs Thermacares 3@10) I stick them whereever I hurt and it helps.
Biofreeze - mostly menthol but helps numb the pain
Prossage - mostly menthol but is more heat than cool and lasts a long time. (both can be found on Amazon.com)
Arnica Gel - when my trigger points act up I rub this soothing gel on them and it can most of the time take the edge off. (I get mine through Amazon.com but I've seen it at GNC and Vitamin Shoppe)
Water therapy - if you have access to a hot tub or a warm pool - there are physical therapy exercises that can really help minimize a flare - you have to keep up with it even though some days it feels like it hurts more than it helps
Massage therapy - I used to have a great therapist before I moved that knew about fibro and once I week I went to her and she helps get rid of some of the knots and tension that can contribute to a flare. Even if you can only afford once a month or having your spouse learn how to work on the trigger points it is worth it.
If you are near a "Center for Arthritis" check them out. My Rheumy was great with fibro and kept me up to date on new treatments and such. Find a good Rheumy who is really familiar with Fibromyalgia and don't give up hope.
Oh and one of the drug treatments I do is a lidocaine iv infustion once ever 3 months. It has worked wonders.
Good luck.
Lehnanne
I have been on more than several FDA approved fibro treatments that did little more than make me feel crazy.
It isn't an easy path to be on and I'm with you - I don't want to be hopped up on pain meds all of my life.
These may not work for you but this is what helps me.
Hot Hands heating pads ( find them in the sporting goods section at Walmart [email protected] vs Thermacares 3@10) I stick them whereever I hurt and it helps.
Biofreeze - mostly menthol but helps numb the pain
Prossage - mostly menthol but is more heat than cool and lasts a long time. (both can be found on Amazon.com)
Arnica Gel - when my trigger points act up I rub this soothing gel on them and it can most of the time take the edge off. (I get mine through Amazon.com but I've seen it at GNC and Vitamin Shoppe)
Water therapy - if you have access to a hot tub or a warm pool - there are physical therapy exercises that can really help minimize a flare - you have to keep up with it even though some days it feels like it hurts more than it helps
Massage therapy - I used to have a great therapist before I moved that knew about fibro and once I week I went to her and she helps get rid of some of the knots and tension that can contribute to a flare. Even if you can only afford once a month or having your spouse learn how to work on the trigger points it is worth it.
If you are near a "Center for Arthritis" check them out. My Rheumy was great with fibro and kept me up to date on new treatments and such. Find a good Rheumy who is really familiar with Fibromyalgia and don't give up hope.
Oh and one of the drug treatments I do is a lidocaine iv infustion once ever 3 months. It has worked wonders.
Good luck.
Lehnanne
Topic: RE: Fibromyalgia and Parathyroid Hyperactivity
Dear RBB825,
Thank you for your reply. I met with the endocrinologist and indeed my Vitamin D was low. She said pretty much the same thing, that it is common with RNY. So we just have to wait for the next blood test run to see if it helped or not.
Thanks again for the insight.
Thank you for your reply. I met with the endocrinologist and indeed my Vitamin D was low. She said pretty much the same thing, that it is common with RNY. So we just have to wait for the next blood test run to see if it helped or not.
Thanks again for the insight.
The greatest pleasure in life is doing what people say you cannot do.
proximity02
on 3/7/11 9:02 am - New York, NY
on 3/7/11 9:02 am - New York, NY
Topic: RE: interstitial cystitis?
I just got diagnosed with IC. Gluten flares me up big time. I developed this after I had surgery so wonder if there is a connection.