What I dont understand about  my Ex, is that when we were married, I was diagnosised with fibromyalgia and he was so understanding and helpful. But, now that we are divorced and he is with his "new" girlfriend, he says that I am faking it and need to get a life. His GF says that I am using my illness as a way to get him back.  I am so not doing that, I left him in 2002 because he has fidelity issues, so why would I want him  back now that I might have MS. But what ****** me off more than anything, is that she has convinced  my Ex that I am faking and now my son is telling me that he doesnt  believe that i am as sick as I am. He says that no one can be in as much pain as I say that I am in nor can anyone have a bad day everyday. I dont care what the Ex and his GF think but my son is another thing. How can I convince my son that its the truth? he sees me lay here and cry because I hurt so bad, but still doesnt believe.  I have taken him with me to the Dr but he believes his dad.  UGHHH men, they make me so mad.  fibromyalgia and MS are two things that I would never wish on anybody ever. 

nancy i know the feeling my x allways said it was in my head i was crazy he would never let me go to the doctors or er. since i was the only one working he was worried i wouldnt be able to work and he would have no money. and my oldest girls still some times say oh mom its all in your head because they herd it so much from there dad this is real pain but how can are loves ones understand when even doctors look at us like were crazy. I know how you feel and i will never say your faking talk to me anytime i understand you completly I want to cry right along with you because i know how this feels

I needed to have answers to my symptoms and the Dr that I was seeing was oh well, lets just take a wait and see attitude was not good enough for me, so I started seeing other dr and finally I found the Dr I am seeing now, she listens to me, doesnt think I am exarating and she is also very frustrated at the other Dr attitude and now her hands are being tied by the insurance company.  I had a brain scan over a yr ago and she wants to do another one but they keep refusing to authorize it.  I know that it can take time to determine what is going on but damn some of the attitudes of these dr  is just keep coming to see me and pay me more and  more money. I feel that they only want my money but I cant afford it.  The Dr I am seeing now, is awesome, she saw me at the grocery store and could tell that I wasnt doing so great and had me go to her office and refused to take money for the call.  With her by myside, i know that we will finally figure it out.    I really hate when I lose my balance or forget what  I am doing or going.  Walked into Walmart the othere day and couldnt remember why I was there. I had to call my daughter to ask her if she knew why I was going to Walmart. I kind of just stood there in the pet aisle trying to remember what it was. Found out from my daughter that I had gone there to get toilet paper, why I was in pet section I have no idea.   I also misplace things and cant find it for a long time, very frustrating. 

What do you do to lesson the attacks of the MS? can they be prevented if you are not on the medication for MS?

i can relate to your pain even though my second doctor said no ms my brain is showing a progressive ms and it scares the he  out of me. i to sometimes have trouble seeing allways have leg pain and numbness and my hands go numb all the time until now i was thinking this was normal fibro stuff. I need a good damn doctor for sure. Any way i to fall i use to think it was clumsy ness but just some times cant even feel my legs. I do have stomach problems to some times cant leave the house because it gets so bad. I say get to a good neoroligist i cant seem to get a straight answer from any doctor but you need to know because they have meds that can help slow down the progression. After being on hear i did some research about lumbar puncters and they dont always show ms now i scared again should i be on meds because the activity is showing progresseve ms in my brain I will have a big earfull for my f////// doctor when i go see him next month

Thanks all, it really helps knowing others are feeling the same way. I have been super busy the past week or so. Daughter just told us we are going to be grandparents again  and she also wants to attend a Pastry school here in Orlando shortly after the baby is born, so that means her beautiful little family will be moving to FL and getting 3 bedroom condo.

Moving about does help and getting the sun (Vit D) down here is something I'm checking out - thanks for that tip.

I don't have to worry about depression - I thank GOD for that. I have a very loving and attentive husband who would kiss the ground I walk on if I asked him to. He's always trying to get me to stay in bed and rest when I'm at the house in PA (which isn't much).  We've just put a bid in on a spectacular house in Florida, our son's tour in the Army is over in September and will be home by my birthday in Oct and I am booking my Art Shows/Fairs during the winter months in Fl. I'm way to busy to be blue.

I lurk a lot, but will try to post more when I have the time. I would suggest if you can afford it, to have a massage once a week, hubby heard from someone at work that it helps with the fibro so he booked a weekly session for me at a local spa here in Orlando. I would encourage it.

Shauna
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