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Topic: RE: wls and fibro
If the savella worked for you talk to your pharmacist and see if the manufacturer has a plan for people who can't afford the regular price, many of them do. My mom was able to get a very expensive drug for her urinary problem for free because she was low income. It's worth checking out. Good luck!
Topic: RE: wls and fibro
thank you ive tried sevella unfortently i dont have good insurence and it is way to exspensive for me all the meds that work good cost me a 200 a month i just got approved for medacare but still high physcription costs it sucks i have tried vitimin d im going to start taking it more regularrly see if it helps thanks for advice i feel i have to take this in my own hands because all the doctors in mich are lost with me
Topic: RE: wls and fibro
HI, I too have fibromyalgia and had WLS surgery back in 2001. i know how you feel, the pain is incrediable and you can not really explain the pain to others because its not really in any one specific place. My Dr has advised me that there is a corralation between fibromyalgia pain and vitamin D. I know that we get a lot of our Vitamin D from the sub and can also take supplements but if you are like me, you may not be absorping your vitamin D. By being low on VIt D you will have more pain. My Dr put me on a really high vit d tablet and this helped with the pain, plus there is a drug called Savella, it is for Fibromyalgia and it works pretty good. The unfortunate thing is that by losing weight it will not help with the pain from Fibromyalgia. Please make sure that your Dr know that you have this issue and also the WLS so that they can properly eveluate you. Good Luck
Topic: RE: wls and fibro
Oh my, a 20 month old definately takes some energy, wish I had some better advice for you. I'm fortunate that I'm 60 and mine are all grown and giving me great grand kids! Most of them live far away so I don't have to tell them no about baby sitting because I really couldn't handle that. I do enjoy visits but couldn't manage a full time stay. I hope things get a little easier for you and do come here if for nothing else but to vent to folks who understand.
Topic: RE: wls and fibro
around hear you have to get your doctors ok to go to any other and they have sent me to a rheumatoligist he said i have fibro and need to go to my phy.. for meds this was years ago plus ive had two neroligist because they thought i had ms. one says yes the other no i get so frustrated with doctors im like a guinea pig to them . As for resting i cant rest i have a very active 20 month old so i have to push though it but my baby helps me on my bad days he gives me a reason to fight and im slowly learning not to panick when i get real bad for awhile after i had y baby couldnt leave the house because walking made the pain come and its in my chest alot so id think i was dying and call an ambulence
Topic: RE: i need support please
thanks for replying back i understand about being limited to what meds i can take i have chronic gastritis allready so i cant take alot of pain meds no ibprofin else i pay dearly for it. I know the wls wont help with my fibro pain but will it help me be able to be more active i am at 300 lbs and at 5ft 2 inches im huge and i know that dont help my ability to walk i have a 20 month old and i feel so bad i dont have the energy to play enough with him. and i have a 17 month old grandson and one on the way im only 38 but the pregnancy seemed to make me 100 worse. I was told i had ms. was even on shots for it now they say nope just fibro ya they think just fibro they say well its not as bad as ms but there not dealing with this every day feels bad to me thank you for taking the time to reply I tend to keep in a shell because so many doctors and x husband made me feel like i was crazy not in pain My new husband is great but i dont like to burden my family over my pain I guess the old feelings come back of feeling like im crazy loretta
Topic: RE: wls and fibro
Welcome! We all know your pain, unfortunately losing weight won't help the fibro. It will help joint pain from arthritis but sorry to say the fibro is here to stay. You can't kick it's butt at best you can make friends with it. You may have good days and then awful days but it truely never goes away. You will have to learn to take advantage of your better days and rest on your bad ones. Try to find a rheumatologist or pain specialist to treat you as they are more informed about treatment than a regular doc. Come here and vent anytime someone is usually around.
Topic: RE: i need support please
Hi I am glad you found this board . You will get understanding here as we know when you say your hurting just what you mean.
I am 64 have severe arthritis, 2 total knee replacements and one shoulder replaced. I have had fibro for years. I had gastric bypass Sept 26,2006. I started at 470 lbs went clear down to 315 and am now about 350. the fibro is no better with the wls. BUT I am glad that I had the surgery because I probably would have been way over 500 lbs with out it. I am struggling with grazing eating between meals now. So the surgery is not a sure thing alone. It is a tool and you still have to work hard..The surgery also limited me on what med's I can take for my arthritis.
Hope this helps,
Pam
I am 64 have severe arthritis, 2 total knee replacements and one shoulder replaced. I have had fibro for years. I had gastric bypass Sept 26,2006. I started at 470 lbs went clear down to 315 and am now about 350. the fibro is no better with the wls. BUT I am glad that I had the surgery because I probably would have been way over 500 lbs with out it. I am struggling with grazing eating between meals now. So the surgery is not a sure thing alone. It is a tool and you still have to work hard..The surgery also limited me on what med's I can take for my arthritis.
Hope this helps,
Pam
Topic: i need support please
Hi im new hear Im going to have wls soon and i have fibro am really scared and need to find people who are going though this. I have alot of trouble finding people who understand the pain i go though let alone wls to please help
Topic: RE: It's been awhile
hi I know its hard to think that your going to have to take meds everyday but you may want to start before it gets anyworse. I have been on them all and wish i found a doctor sooner who understood what i was going though no one understands this its so hard because every time you go in a diffrent part is hurting one day i can barley walk the next day i can barley move my arms. i had to quit working because i could barley walk any more its hard at 38 to think you can barley move sometimes and i feel people tend to think I am just faking it. Ya i lay in bed at not crying trying to be strong for my family and my baby son but its so hard. Im hoping losing weight helps but am really scared about wls my baby needs me
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