Recent Posts

kahlana
on 4/11/11 1:24 pm - Sitka, AK
VSG on 01/26/12
Topic: RE: R U tired of people blaming your weight for your pain?!!!!
hi Im new here so I hope its okay if I chime in here too. When I was diagnosed with fibro I weighed 145 pounds. All of the medications I have been put on in an attempt to control the pain over the years to say nothing of the surgeries i have undergone since being diagnosed in 1997 have packed the pounds back on so now I am up to 227 again. I have had more than one medical professional tell me I should lose the extra weight to help with my pain levels. After having fibro while slim and having it while overweight I can say from experience... My weight does not really affect my pain scale. Yes it is harder to do the things i love at this weight and yes it is contributing to other health issues but as far as my FMS goes, the pain is the pain is the pain. Unless i over do then I pay big time. One lesson I have learned over the years, if I have to go to a new doctor I find out what they know about FMS. If they blow me off about it or ignore it all together I find a different doc. As far as regular people go i usually dont bring up my FMS unless specifically asked about it. because quite frankly if you arent visibly sick people dont want to be educated about your "issues." If someone suggests I need to lose weight I just tell them I am pregnant. When they back up and ask when Im due I just laugh and tell them Im just kidding. That usually leaves them pretty flustered which they deserve for being rude as heck about something that isnt their business. And its quite interesting how suddenly they have somewhere else to be... now! lol
Really you just have to take some people with a grain of salt
Redheaded_Furie
on 4/11/11 8:02 am - FL
Topic: RE: helpful sleep
I hope it works for you Pam, good sleep is so important.  I myself don't get more than 5 hours of sleep a night, it doesn't matter what time I went to bed. My mind is always racing.

I have found that if I read before I go to bed my sleep seems deeper, but the minute I open my eyes, my mind and thoughts get me moving again.  I wouldn't call it hyper activity but I would think it's close. I've always been very high strung.

Shauna

BTW, where in Maine? I will be in South Portland for the whole month of June, Sugar Daddy (hubby) has a job up there and I get a New England Summer Vacay.
MainePam
on 4/11/11 6:38 am - Bucksport, ME
Topic: helpful sleep
I saw in one of my magazines about a new disolving melatonin. I take ambien AND melatoinin to sleep but the disovling really works fast with in 15 minutes but I have to take 4 tabs. I finally found it at Wlamart and it is very hard to find.
Hislady
on 4/10/11 5:49 am - Vancouver, WA
Topic: RE: fibro meds interfere with weight loss?
As you've probably already learned that different meds work different on each person. From what I've read Lyrica is the worst for making you hungry and weight gain. I used it for awhile but started gaining, no thanks! Now I'm on Cymbalta and I don't seem to have that problem with it. However the only real pain relief for me comes from narcotics, I take morphine 3x a day and oxycodone every 6 hrs.
Not real sure how the RNYers do with pain meds but from what I read they have quite  bit of trouble with all meds. I would prefer getting the VSG if it's available to you because they still absorb normally. Yep losing the weight may help you feel better in general but it won't help the fibro pain, I think everyone here would agree with that. Hopefully some of the RNY folks will chime in and can tell you more about how the meds work for them.
impoopedx3
on 4/10/11 1:40 am - GA
Topic: fibro meds interfere with weight loss?
I'm relatively new to the forum and in the process of jumping through insurance hoops. Should have WLS in August sometime if all goes well. I am 52, have had Fibro for about 12 years, and am on a number of meds (aren't we all?). I take Lyrica for fibro and it takes the edge off the pain enough so that I can function. BUT it makes me hungry all the time!!!  I know WLS helps get rid of that nasty ghrelin hunger hormone by cutting out the portion of the stomach that produces it, but does that mean drugs like Lyrica that stimulate hunger will no longer make me hungry or will I struggle with hunger still and have more trouble losing than the average patient????!!!  Anyone with any experience with this? I know some antidepressants also make you hungry. I can't find ANYTHING that explains how these meds contribute to weight gain, other than they slow down metabolism (not sure how), 

Another concern I have is that my doctor recommends RNY, but he's not too informed about fibro. He said getting the weight off my joints would help. Yeah, but I don't have arthritis doc. It's more complicated!  I'm concerned about being able to find adequate pain relief post RNY. I've heard folks say meds only work 1/2 as long as they are supposed to because of the new anatomy. NSAIDS don't work for fibro pain anyway, so not worried about that.

Thoughts?

Thanks, Beth
            
Hislady
on 4/9/11 12:43 pm - Vancouver, WA
Topic: RE: New here---wondering what he heck is going on?
Welcome Christian, men can indeed have fibro, it tends to be more in women but men also can have it. My best description and one I often hear as a description is that it's like the worst flu you ever had except it never goes away. It is a misfiring or over activity of the nerves. We often just feel like all our nerves and muscles are on overdrive, sensitive to everything. That may be why some of your ADD drugs help it because it maybe calms that part of the brain where the over active nerves are firing. I would stronly suggest you see a rheumatologist or a pain clinic to get an exact diagnosis. There are pressure points they can test to see if you respond. Unfortunately as far as treatment goes it is trial and error for each person, what works for one doesn't automatically work for another. You have to keep working with a doc to get the right combination. You are more than welcome here, we are a pretty nice bunch of people and definately understand your pain. Use the internet and find more info and there are some good books out there on fibro so educate yourself. You may have to educate your docs too because alot of them don't know much about it. Feel free to visit here anytime!
Jennifer M.
on 4/9/11 6:08 am - Goodyear, AZ
Topic: RE: New here---wondering what he heck is going on?
 Chrstian, it's Jen, the original poster. 
I am so sorry to hear that you are going through this. 
No one deseves this kind of of suffering. Very generally speaking fibro is characterised by constant pain and aching throughout the body, severe fatigue, forgetfulness, mental foginess, stiffness in joints also usually are depression and frequently anxiety. I think the physical symptoms cause the mental symptoms. 
This is just a VERY basic description of fibro. And it can be different for everyone. Its odd, Hippocrates originally described fibro but we still dont have any real answers for the sufferers. There is a lot of resources online so google it. Feel free to come here for any support and we will be here for you and try to help as much as we can. 
I won't recomend any medicines because I have not found anything that really helps. Don't let others judge you or hurt you for seeking relief from your pain. Don't be me. 
 ...a work in progress...    
Christian I.
on 4/9/11 5:30 am - TX
Topic: New here---wondering what he heck is going on?
I had replied this on someone else's post, but I'm really worried about even asking this, so I'm reposting this as its own thread:

Hi You all,

I've never been here, and don't know much about fibro...I saw a comercial for some medicine and they described in general terms what it feels like (what it is) and it sounded scarily similar to what I've been experiencing.

I am scared to even consider the possibility but, what is Fibro?  How does it feel? What are the symptoms?

I feel tired all the time, like the nerves in my back, shoulders, legs, feet toes, etc are...burning, or like little needles all over the place, like too much electricity running through the "wires" of the nerves.

There are times when the pain on the back of my left shoulder blade, all the way up the neck to the base of the skull,  is so tight that, I just have to lie down and do nothing for hours.

3 months ago or so, I was diagnosed with ADD and Anxiety and began to take alprazolam 0.25mg (up to 3 times a day if needed - and this seems to help with the physical burning feelings...which triggers the anxiety..so first I feel the physical and then I get very stressed and anxious, so I take the alprazolam, and that seems to help with both physical and mental...for about 30 minutes.).

I was also given a prescription for something very similar to Adderall (its called Dextrostat ) and that seemed to help initially with the ADD (and Depression that I've had for at least 5 years.)

But now I worry that these physical sensations might be either

A) triggered by the Adderall/ or Alprazolam  OR
B) made worse by it.

Please don't scare me anymore by telling me what you have "heard" about these medicines that I'm taking with A LOT of care and almost unwillingly because the alternative its a different kind of hell of confusion, forgetfullness, frustration and worry. 

If you've taken them and noticed a cause-effect relationship to Fibro, please tell me...other than that I really don't need anything else to feel bad/ worry about (like the original poster, I too have been shamed for needing this medications that, whatever else they do, they did help me to function (mentally and emotionally) but now it is the physical pain that is ofcourse worrying me.  Tylenol does NOT seem to help at all.

I just want to feel normal (not depressed, anxious, tired, confused, and especially NOT in physical pain)  because this is all becoming like a nervous vicious circle that I dont' know, if one thing is related to another (directly) or not...forgive me if I sound frustrated.

I am scared, sad and feeling lonely, confused AND in physical pain. 

btw, prior to WLS back in 2002, I did NOT have any addictions (even the obesity had more to do with a back injury and the inability to do mucy), anxiety or painful/burning feelings of any kind.

help!
Christian I.
on 4/9/11 5:15 am - TX
Topic: RE: Please Help, need advice
Hi You all,

I've never been here, and don't know much about fibro...I saw a comercial for some medicine and they described in general terms what it feels like (it is).

I am scared to even consider the possibility but, what is it?  How does it feel?

I feel tired all the time, like the nerves in my back, shoulders, legs, feet, etc are...burning? little needles.

There are times when the pain on the back of my left shoulder blade, all the way up the neck to the base of the scull is so tight that I just have to lie down and like do nothing for hours.

3 months ago or so, I was diagnosed with ADD and Anxiety and began to take alprazolam 0.25mg (up to 3 times a day if needed - and this seems to help with the physical burning feelings...which triggers, mental anxiety).   I was also given a prescription for something very similar to Adderall (its called Dextrostat ) and that seem to help initially with the ADD and Depression, but now, these Physical sensation of my nerves being on fire...like there is too much electricity running through the nerves, makes me question just what the hell is wrong with me.

Please don't scare me anymore by telling me what you have "heard" about this medicines that I'm taking with A LOT of care because...anyway.  If you've taken them and noticed a cause-effect relationship to Fibro, please tell me...other than that I really don't need anything else to feel bad about (like the original poster, I too have been shamed for similar reasons by a lot of people).

I just want to feel normal (not depressed, anxious, tired, confused, and especially NOT in physical pain)  because this is all becoming like a nervous vicious circle that I dont' know, if one thing is related to another (directly) or if this is the typical crap that happens to us long-term post ops...forgive me if I sound frustrated.

I am scared, sad and feeling lonely and confused.  btw, prior to WLS back in 2002, I did NOT have any addictions, anxiety or painful/burning feelings of any kind.

help!
MainePam
on 4/8/11 11:05 pm - Bucksport, ME
Topic: RE: New to forum
All of us here on the board are here for each other; so don't think of it as whining.
I know for me it is good that people here really now what were going thru and that when we say we are in pain we are in pain.
My daughter has migrane headaches with her fibro and she has them everyday.

keep us posted how your doing...
Pam
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