5 1/2 yr post-op.. fibromyalgia, severely anemic, or both???
Blessings,
D
Danyele
286/ 269 /145
I know that low iron can cause similar symptoms to RLS.
How about your B12? or B1? low levels of those (i.e. B12 < 500 or 600) may cause in some people neurological issues... How about any other vitamins... how about copper? (copper is essential to blood building and may cause non-iron anemia)
I had herniated disks and had 2 injections (in 2003 - way before RNY) and I understand the weight gain. I blame the steroids on my weight gain and inability to lose on my own.
Have you had a complete blood tests? you probably need all of them to determine what is really going on.
Including complete thyroid test (TSH, T4, freeT4, T3, Free T3, rT3 and so on). You may also check the adrenal hormones.. The steroids mess them up for me for very long time.
Iron infusion may help for one thing - but iron is really hard on the liver and may cause some temporary inflammation and pain. Last year - after my iron infusions it felt like my bones were hurting inside... specially at evenings.. that lasted for a few weeks (dull deep ache - not real pain). I can't imagine having that every 2 weeks...
Hala. RNY 5/14/2008; Happy At Goal =HAG
"I can eat or do anything I want to - as long as I am willing to deal with the consequences"
"Failure is not falling down, It is not getting up once you fell... So pick yourself up, dust yourself off, and start all over again...."
I have an appointment with my bariatric surgeon on June 28. I did the blood work that the office sent me, but I haven't seen it yet. I'm WAY, WAY overdue to see him. I moved twice since my 3 year post op (once to DC, and then back to CA, but 2 hours away from my surgeon). But now I'm tired of messing with my local physicians and I'm going to my surgeon for answers (hopefully!).
I know that the iron infusions probably aren't a good long term solution. Thankfully I've tolerated them pretty well so far. They do give me IV Benadryl first though, so I take a long nap when I get home from the IV center.
Any further suggestions from other members would be most appreciated!
D
Danyele
286/ 269 /145
I know that some vitamins may cause nerve damage.
If you want to pm me your email I an send you some list of test that some smart people recommend and also some (word format) document that summarize the vitamins - minerals deficiencies and possible issue.
BTW: I just found out that my B6 is too high. So I need to scale that back a lot. High B6 may cause nerve damage... I did not know that...
Hala
Hala. RNY 5/14/2008; Happy At Goal =HAG
"I can eat or do anything I want to - as long as I am willing to deal with the consequences"
"Failure is not falling down, It is not getting up once you fell... So pick yourself up, dust yourself off, and start all over again...."
I would suggest getting tested for Lyme disease I have had it 5 years. It can be misdiagnosed as FM or cause FM. It can also cause severe fatigue. You do not need to remember a tick,bite or rash. Ask for IgM and IgG western blot for Lyme disease I have all kinds of pain from it. Steroids can make Lyme go crazy.
If you need more info shoot me a message
on 6/7/12 11:12 pm, edited 6/7/12 11:13 pm
Moving and sweating also really help ( try swimming and a brief sauna or steam room session afterwards afterwards if U have back pain) .
I really believe the common-sense approach to maintaing wellness is so much more sophisticated than all the massive vitamin - theories ( ditto , x 10 for DRUGS ) .
Have you tried eating organic produce or beter yet , growing your own ? FRESHNESS makes ALL the difference in EFFECTIVENESS ! And its SO ridculously easy to grow Ur own ...
I am having some of your issues. I just went through 2 weeks of iron infusions every other day. They are going to re-check my levels in 2 weeks. I have been diagnosed with pernicious anemia for over 2 1/2 years (I am about 3 1/2 years post op).
I take the sublingual B-12 and the slew of other vitamins recommended for RnY's, but I had kind of a "mutant" procedure and will never produce enough intrinsic factor to generate blood manufacture at the appropriate level. I am down 2 pints of blood as I write, and my last transfusions were in September (2 units). I have been scoped inside, outside and upside down and am not bleeding anywhere. I have had so much blood transfused over the last 3 years (due to the anemia and other health problems) that they do not want to do any more transfusions if humanly possible due to the risk. I was diagnosed with FM 13 years ago when it was rarely heard of and even more rarely diagnosed. My first spinal fusion was in 2007 - I will be fortunate to get through 2012 without another one. I have degenerative disc disease, which never stops - the degeneration just continues at whatever rate until you pass away.
I have been extremely fortunate with choices of doctors.
So I know your pain (literally). And I know your frustration. I am working on studying this whole mess with help from outside resources as my docs tackle everything with whatever they can do. Not many docs know about vitamin therapy, especially about how essential high (or what look to be high to them) B12 levels are to our health. My docs have been on a learning curve with me, and thank God they are mostly open to it.
So, no answers from me. Just want you to know you are not alone. It is extremely frustrating to not know what is causing particular sets of symptoms. You get your hopes up that if a certain malady is the cause, then you will certainly feel better when it is treated. Then it is treated and nothing changes for the better with your physical symptoms.
I hope you find your answers. This is such an individual journey for all of us. Take as much good care of yourself as possible.
Oh, and if you need Vitamin D, take a good dry D3 supplement. Go outside to play - but if you're post op, don't count on the sun anymore for the upkeep of your Vit D levels. Doesn't work that way for us post-ops. =)
Edited to add: The next step for me is something called Epogyn (sp?). It is a hormone that is given via injection. Of course now that I type this I can't remember which it does, but it is thought to help jump start either iron or blood production. Don't have time to look it up right now but you may want to google it or check with your doc. My understanding is that it is relatively new - but like I said, I cant check my resources at the moment and could be thinking of something else entirely. All I know is that it is the next step for me as determined by my nephrologist. Good luck to you.