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Topic: RE: Newly diagnosed Type 1
Hi Joani
I have been a type1 diabetic for 46yrs. No two diabetics are alike. It is a very difficult disease to understand. so many things other than food and insulin can affect your blood sugar. If you are sick it will be higher, if you are stressed it will be higher, if you excersise more it will be lower, if you don't eat enough it will be lower.
But keep the faith, you can live very well with diabetes. And if you can keep it in control most of the time you will be fine. There will be times when it will be low or high and you will have no idea why, so you do the best you can. I like mine a little higher because as you know low's are horrible. You may be a little sensitive to insulin, but again you will learn with practice and help from your doctor. Try to relax a little bit. Lot's of us have lived with it for years and do very well.
Let me know if I can help at all.
Karen
I have been a type1 diabetic for 46yrs. No two diabetics are alike. It is a very difficult disease to understand. so many things other than food and insulin can affect your blood sugar. If you are sick it will be higher, if you are stressed it will be higher, if you excersise more it will be lower, if you don't eat enough it will be lower.
But keep the faith, you can live very well with diabetes. And if you can keep it in control most of the time you will be fine. There will be times when it will be low or high and you will have no idea why, so you do the best you can. I like mine a little higher because as you know low's are horrible. You may be a little sensitive to insulin, but again you will learn with practice and help from your doctor. Try to relax a little bit. Lot's of us have lived with it for years and do very well.
Let me know if I can help at all.
Karen
Topic: RE: Newly diagnosed Type 1
Oh you think that A1C is bad? It was 13.9 when I was first admitted to the hospital. I did not find that out till I went to my primary doctor and he had the test results sent over to his office. He almost fell off his chair. I was walking around feeling very ill for a long time before finally going to the ER.
I am testing about 2 hrs after I eat and sometime sooner if I feel like I am going low.
I will figure this all out. I am determined.
My doctor has mentioned something about a sliding scale. He says I will have to adjust my insulin based on what my level is before I eat and what I plan on eating. Maybe when I get to that point things will even out.
I am testing about 2 hrs after I eat and sometime sooner if I feel like I am going low.
I will figure this all out. I am determined.
My doctor has mentioned something about a sliding scale. He says I will have to adjust my insulin based on what my level is before I eat and what I plan on eating. Maybe when I get to that point things will even out.
Topic: RE: Newly diagnosed Type 1
You have had some good advice. I have had Type 1 diabetes for 30 years and I just dont think there is an easy answer for any of it. Sometimes we know more than our Drs. I am on a insulin pump and I love it. I have had to adjust my levels alot after surgery and like my endo said, we just have to play with the insulin amounts. I will tell you that I do not take any insulin when I eat, which is really strange. If and when I do, i drop too low.
How long after you eat are you testing your blood sugar? Normal is two hours. Before surgery my diabetes specialist said that it sometimes takes 3 hours for the insulin to kick in (Novolog).
It sounds like you are on the right track.
In all honesty, I was really hoping after surgery and my weight loss that a miracle would happen and I wouldnt need insulin anymore. But dang it, that just isnt going to happen. One can always dream.
BTW yes, your A1C is horribly high. Hope your Dr keeps an eye on that.
Good luck and as the others said. You can always pm me as well.
How long after you eat are you testing your blood sugar? Normal is two hours. Before surgery my diabetes specialist said that it sometimes takes 3 hours for the insulin to kick in (Novolog).
It sounds like you are on the right track.
In all honesty, I was really hoping after surgery and my weight loss that a miracle would happen and I wouldnt need insulin anymore. But dang it, that just isnt going to happen. One can always dream.
BTW yes, your A1C is horribly high. Hope your Dr keeps an eye on that.
Good luck and as the others said. You can always pm me as well.
Moving on to better health
(deactivated member)
on 6/4/11 12:55 am - Woodbridge, VA
on 6/4/11 12:55 am - Woodbridge, VA
Topic: RE: sucks
We had the same surgeon! heh, hope your experience with him was better than mine (though it sounds like perhaps it wasn't if no one ever mentioned the possibility of reactive hypoglycemia to you even though I KNOW they were studying post-WLS hypoglycemia at the lab at Johns Hopkins when I was enrolled in a different WLS study there!).
Protein and veggies and FAT are all fine to eat (no, really - fat is not unhealthy for you unless you eat it WITH lots of carbs). If it's reactive (likely), it will be more difficult to control while eating carbs. What I understand may be happening is that the carb**** the intestines faster (primarily due to bypassing the pylorus), so the body reacts with a rush of insulin. However, it provides too much insulin, and that causes your glucose level to go lower than normal. To avoid this, I would stick primarily to protein, fat, and low-carb veggies (as in not potatoes, corn, etc.).
Protein and veggies and FAT are all fine to eat (no, really - fat is not unhealthy for you unless you eat it WITH lots of carbs). If it's reactive (likely), it will be more difficult to control while eating carbs. What I understand may be happening is that the carb**** the intestines faster (primarily due to bypassing the pylorus), so the body reacts with a rush of insulin. However, it provides too much insulin, and that causes your glucose level to go lower than normal. To avoid this, I would stick primarily to protein, fat, and low-carb veggies (as in not potatoes, corn, etc.).
Topic: RE: Newly diagnosed Type 1
Now although they diagnosed you as type 1 - being insulin dependant for a period shortly after diagnoses, the pancreas could still produce some insulin - espeically if it has a help mate of insulin getting injected. This is the last ditch hurrah before it goes totally out. NOt sure if this is what is happening, but its an idea.
Been type 1 for 26 years - if you have more q's PM me if you'd likeOh thank you so much for your response. I actually just saw the doctor a few days ago. He has lowered it to 2 units. I told him I do not eat enough, LOL. He says that once we get my levels stable I will be doing exactly like you said. I will be doing the insulin based on what I eat. I will probably be taking it after meals. Even if I plan on eating a meal of 30 -45 carbs it may not always work out that way.
OH maybe that is why I drop so low some times. The other day I ate 28 carbs (mini muffins) and did 2 units. Within an hour I dropped to 49. That was a horrible feeling. Being I am going low so often he also says I may have to adjust the insulin based on what my sugars are before eating. He has me testing 8 time a day right now. That is worse than the actual shot.
If my pancreas does eventually give out totally does that mean will have to take more insulin some day? My primary doctor has me coming back next week to do more blood work. Right now my AC1 was a 12.4. High I know. And I think he is gonna do the cpeptide level again.
I just want to thank you guys for all the info. It really helps. I don't even know anyone with diabetes to talk to.
On June 2, 2011 at 1:11 PM Pacific Time, Mishelle R. wrote:
i woudl talk to the doctor about taking the novolog based on the number of carbs you eat. If you have a low carb meal, then 3 units may not be needed. Typically they say 1 unit per 10 to 15 grams of carbs, depending on your sensitivity. But again talk to your doctor before making changes. Already saw that you were taking it after you eat, I have to do that too at times.Now although they diagnosed you as type 1 - being insulin dependant for a period shortly after diagnoses, the pancreas could still produce some insulin - espeically if it has a help mate of insulin getting injected. This is the last ditch hurrah before it goes totally out. NOt sure if this is what is happening, but its an idea.
Been type 1 for 26 years - if you have more q's PM me if you'd like
OH maybe that is why I drop so low some times. The other day I ate 28 carbs (mini muffins) and did 2 units. Within an hour I dropped to 49. That was a horrible feeling. Being I am going low so often he also says I may have to adjust the insulin based on what my sugars are before eating. He has me testing 8 time a day right now. That is worse than the actual shot.
If my pancreas does eventually give out totally does that mean will have to take more insulin some day? My primary doctor has me coming back next week to do more blood work. Right now my AC1 was a 12.4. High I know. And I think he is gonna do the cpeptide level again.
I just want to thank you guys for all the info. It really helps. I don't even know anyone with diabetes to talk to.
Topic: RE: NIPHS - Noninsulinoma Pancreatogenous hypoglycemia syndrome
Janet,
It is a constant struggle. I have started a medication called acarbose. It is helping somewhat for now. Let me know what happens with yours.
It is a constant struggle. I have started a medication called acarbose. It is helping somewhat for now. Let me know what happens with yours.
Topic: RE: NIPHS - Noninsulinoma Pancreatogenous hypoglycemia syndrome
Kelly,
We had our weight loss surgeries on the same day and the same year and now we are experiencing the exact same thing! I too have NIPHS, it has destroyed my life. I am completely disabled and nothing seems to be working. Like you it is getting worse, not better. I am scared to eat anything at this point.
I will be seeing an Endocrinologist at UCSF who specializes in this and if he has any good information I will pass it along. Also how are your iron levels? Any anemia? I am starting a Facebook page to make people considering Gastric Bypass more aware that this is happening. I would love to hear more about your struggles and compare notes. I am so sorry, I know what you are going through.
Janet
We had our weight loss surgeries on the same day and the same year and now we are experiencing the exact same thing! I too have NIPHS, it has destroyed my life. I am completely disabled and nothing seems to be working. Like you it is getting worse, not better. I am scared to eat anything at this point.
I will be seeing an Endocrinologist at UCSF who specializes in this and if he has any good information I will pass it along. Also how are your iron levels? Any anemia? I am starting a Facebook page to make people considering Gastric Bypass more aware that this is happening. I would love to hear more about your struggles and compare notes. I am so sorry, I know what you are going through.
Janet
Topic: RE: Newly diagnosed Type 1
i woudl talk to the doctor about taking the novolog based on the number of carbs you eat. If you have a low carb meal, then 3 units may not be needed. Typically they say 1 unit per 10 to 15 grams of carbs, depending on your sensitivity. But again talk to your doctor before making changes. Already saw that you were taking it after you eat, I have to do that too at times.
Now although they diagnosed you as type 1 - being insulin dependant for a period shortly after diagnoses, the pancreas could still produce some insulin - espeically if it has a help mate of insulin getting injected. This is the last ditch hurrah before it goes totally out. NOt sure if this is what is happening, but its an idea.
Been type 1 for 26 years - if you have more q's PM me if you'd like
Now although they diagnosed you as type 1 - being insulin dependant for a period shortly after diagnoses, the pancreas could still produce some insulin - espeically if it has a help mate of insulin getting injected. This is the last ditch hurrah before it goes totally out. NOt sure if this is what is happening, but its an idea.
Been type 1 for 26 years - if you have more q's PM me if you'd like
Topic: RE: adjust ing pump while on pre-op diet
I am actually pleased to see other Type I - insulin dependent - pump users on this sight. Prior to my surgery, now more than 3 yrs. ago, there wasn't a single person on here with the same type of diabetes or even a pump user like myself. So, I'm sorry? to say that I'm glad to see your questions.
What I did was to keep checking my blood sugars more often than usual. If my sugars dropped too low, I would shut off my pump for 1/2 hour at a time. I do that now if I am feel my blood sugars falling & know that I am not about to eat. When you're on a liquid diet, it's hard, but not impossible to get your blood sugars up with either a SMALL sugar popsicle or a SMALL sugar drink. You say you are vey insulin resistant, so you may not have that much of an issue with lows as I did. The other thing is definitely talk to your endocrinologist about reducing your basal rates. Since you'll be testing your blood sugars more often, if due to your basal rate being reduced, your blood sugars climb, you can always take the appropriate amount of insulin to cover your high blood sugars.
AS ALWAYS CHECK WITH YOUR DOCTOR FIRST!!!!!
The wonderful thing for me after having my lapband procedure is that first, I lost my extra weight & have been able to keep a good majority of it off AND I reduced the overall daily requirement of insulin from over 100 units per day to some days less than 30 units or so!!! It's 'cause your insulin resistance normally reduces as your weight comes off, thus making your body more sensitive to the insulin that you will be taking after the operation.
I am still working on keeping my weight off, but with the lap band, I am able to request adjustments as often as I need.
Hope this was helpful.
Sharon in DE
What I did was to keep checking my blood sugars more often than usual. If my sugars dropped too low, I would shut off my pump for 1/2 hour at a time. I do that now if I am feel my blood sugars falling & know that I am not about to eat. When you're on a liquid diet, it's hard, but not impossible to get your blood sugars up with either a SMALL sugar popsicle or a SMALL sugar drink. You say you are vey insulin resistant, so you may not have that much of an issue with lows as I did. The other thing is definitely talk to your endocrinologist about reducing your basal rates. Since you'll be testing your blood sugars more often, if due to your basal rate being reduced, your blood sugars climb, you can always take the appropriate amount of insulin to cover your high blood sugars.
AS ALWAYS CHECK WITH YOUR DOCTOR FIRST!!!!!
The wonderful thing for me after having my lapband procedure is that first, I lost my extra weight & have been able to keep a good majority of it off AND I reduced the overall daily requirement of insulin from over 100 units per day to some days less than 30 units or so!!! It's 'cause your insulin resistance normally reduces as your weight comes off, thus making your body more sensitive to the insulin that you will be taking after the operation.
I am still working on keeping my weight off, but with the lap band, I am able to request adjustments as often as I need.
Hope this was helpful.
Sharon in DE
Sharon in DE
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