Recent Posts
The DS surgery far exceeded my expectations, and I need some opinions.
It has only been a year and I have lost 170 lbs. I am eating right and in my opinion large amounts of food. I take my vitamins, and I add in extra protein drinks but it's always worse for my tummy. I was told to drink High calorie protein drinks but they are all high in sugar. As you know that makes your day miserable. Any suggestions? I seriously can't afford to lose anymore, and I do not want to have to get forced foods.
I eat eggs, meats, fish, veggies, and maybe a small amount of carb at night. Never where I am not home and in control of what can happen. I am monitored, blood work constantly i just cant find this new request that will work. I do not know how to get in more protein. Anyone else have this issue?
Thanks
Hey Julie,
Thank you very much for your reply.
Would you mind explaining why so many DSers see an endocrinologist? Is this a must? Are they familiar with the DS?
I've made an appointment to see a specialist Rheumatologist, who also deals with osteoporosis. Is this ok, or does it have to be an endocrinologist?
Thanks for the link - it'll be very handy. And i'll mention the Fotero with my Rheumatologist.
Just another question please? Should DS patients be treated for osteoporosis differently? Should we have a higher dosage because we malabsorp nutrition?
Thanks.
Hey catwoman7,
Thanks so much for your reply. I heard medication for osteoporosis can be unpredictable. Good luck with your future treatments.
I also thought that yoga was not going to help much. My pilates trainer is going to teach me weight bearing exercises using my body weight for now, cause to be honest, i just cannot move so much. I've lost so much strength after having 3 plastic surgeries to remove excess skin. And recovery took me a few years cause in the meantime I developed wheat intolerance, and my dairy intolerance got worse.
If you'd like to, please do let me know what treatment your endocrinologist recommends?
Thanks.
Please get a second opinion and do your research before you select a treatment. Once you go down a particular path or class of medicine a lot of the effects cannot be reversed.
I got my duodenal switch at 47. I went from a normal dexy scan to full blown osteoporosis in one year with all normal labs. I found out I had osteo process from a double fracture in my wrist from a very I found out I had osteo process from a double fracture in my wrist from a very slight fall.
I am so fortunate that I found an excellent endocrinologist who knew that many of the classes of osteoporosis meds would not grow new bone just harden the bones that I had which could then further cause higher risks of breaks.
At diagnosis I had severe osteo in my spine and my femur in fact I had lost a 1/2 an inch due to micro fractures in my spine.
I started on Fortero in May of 2018. I have provided a link that compares the different meds. With a year and a 1/2 on the meds I have gone back to a normal dexi in my spine and all expectation is that by will have a normal dexi on my femur next year. In fact I actually gained that half inch back meaning that the micro fractures healed and I grew new bone and gained back half inch.
Fotero is the only med that actually increases the number of bone-forming osteoblasts.
https://www.health.harvard.edu/womens-health/osteoporosis-drugs-which-one-is-right-for-you
After 2 years on fortero the plan is for me to go on a med that your doctors recommanding like re clast that will harden and solidify the new bone growth I achieved. You need to try to have new bone growth and then solidify that improvement just my opinion make sure you're seeing an endrocrinologist who specializes in osteoporosis.
Blessing
Julie
P.S. high B12 is rarely a problem. Mine has been over 2000 at times. It's been hovering around 800-1000 lately, and that's fine for me. Some people don't feel well when it gets much lower than that, even if they're still within the "normal" range.
K2 is the version of K that helps with bones.
I also have osteoporosis. I don't know if it was the RNY or the fact it runs rampant in my family - could be either. I didn't have a baseline before I had RNY, so I'll never know.
there are several drugs that will keep you from losing more bone and some that will even rebuild bone. I'm on zoledronic acid (Reclast) as well, but in my case, it hasn't helped. I'm scheduled to see an endocrinologist at the end of the October who specializes in osteoporosis. I'm assuming she'll want to try a different drug.
as far as exercise, they recommend weight-bearing exercise - so weight lifting is good - but so is anything where there's weight coming down on your bones, like walking or dancing. Yoga is great for flexibility and balance, but not sure about osteoporosis. Maybe some of the "power" varieties (??). I never really thought of it as particularly good for osteoporosis, though..
hey there,
i'm 38 (had the DS in 2011) and just found out i have osteoporosis (i'm right on the borderline of being osteoporosis). I'm so upset, scared and confused:(
I'm already on creon, due to past complications. I'm 95kg (put on 10kg once I started Creon).
I'm going to start doing weight bearing pilates and exercises, and doctors will give me Zoledronate IV treatment every year, starting from March 2020. Should I do yoga, or do I have to lift weights at the gym (which I really hate)? What about walking?
1) Could someone pls advise me what kind of Vit K (1&2) I should be taking?
This is what I currently take daily:
2,200 ug K (1000 µg K1, 1000 ?g K2 (menaquinone-4), and 200 µg K2 (as menaquinone-7)
2) How do I check my vit K levels on my blood results?
My recent blood results
Parathyroid Hormone 36.85 (range 15-65)
Total Protein 76 (60-80)
Albumin 43 (35-50)
Calcium 2.31 (2.20-2.60)
Adjusted Calcium 2.33 (2.20-2.60)
B12 852 (1 197-771) i've lowered the dose (1,000 ug) from once a month to every other month
D 100 (75-200)
3) Can the osteoporosis be reversed? Was it due to the DS? my mom and grandmother also had some for of bone osteoporosis / osteopenia
It may sound crazy, but I have been running to the ladies room too often. Not sure if it's because by 10am I would have cranked 52 oz of water, but while I'm at work I would have visit at least 5 to six times within 8 hours. Does anyone eles?
are you talking about intimating or bowel movements?
if bowel movements, if you are eating carbs , your bowels will move often.
My typical pattern is twice in the morning, about a half an hour apart. If I overdo it on fat, I could have 3. Have you developed lactose intolerance? Try avoiding milk and see if that helps. It can be in protein drinks, so check. Are you using a probiotic? Culturelle can help. I drink bottled water now, because I find I'm very susceptible to germs in City water, and that can give me the runs. Try eating a low fat breakfast and then only solid protein after that until 2 pm. If that works, you are eating too much fat. I do drink more liquids after 3 pm, but have 2 large cups of coffee in the morning. No mil****il after 5 pm, but yogurt and cheese are ok. I save most fat consumption for late afternoon and dinner. Nothing fatty after 8 pm. Bottom line, if what you are eating is so problematic, experiment with different foods and intake patterns. If you are still experiencing this many, see the doc. It's not normal.
It may sound crazy, but I have been running to the ladies room too often. Not sure if it's because by 10am I would have cranked 52 oz of water, but while I'm at work I would have visit at least 5 to six times within 8 hours. Does anyone eles?
