Recent Posts
RNY on 04/16/12
Topic: wls and fibro
hi im new hear im in pain all the time i thought this would get better but it dont ive been on all kinds of meds and have gained weight or had side effects from all. i know loosing weight would help some. But am in real need of some one who understands all this pain. I tend to hide most of my pain from people i feel they get sick of hearing how im sick all the time. went bankrupt once from all the er visits ive let the fibro kick my butt instead of the other way around. I guess im just looking for some suport a kind word im trying to quit smoking so i can have wls and i feel this would help me some i tend to be able to get around alot better when im skinner.
RNY on 04/16/12
Topic: RE: Need help deciding on medication
hi im new hear to ive been on cymbalta lyricia both at once and alone plus im on now neurotin flexirl xanax and lexapro im trying to get off the nerotin just because of the weight gain witch i had with lyricia to gained 50 lbs lost 80 when came off it but was pregnant to. i allready am looking at wls so i need to get off meds that make me gain weight. I feel doctors just throw stuff at me and dont think about the side effects. The more weight i put on the worse the pain is. Im allso on vicodin because i cant take tramadol. The lexpro has helped my anxity and deppression i feel better but i think the nerotin has quit working and will find out what the doctor is going to try next i think the hardest is trying to find a doctor that understands what your going through *****ally wants to spend time to work with you I hated my doc in the bigging but hes the first doc that relieves im in real pain hear. Good luck i know how you feel
RNY on 04/16/12
Topic: RE: First time posting
I have had fibro for years but am still trying to figure out what makes it worse. Ive been on every med you can think of i hurt if its to hot i hurt really bad if its cold and the meds leave me feeling way hot all the time could be the heat to.
Topic: RE: does wls help any at all?
Hi Ida, I also have fibro, RA and was diabetic and HBP, while I still have fibro pain I can tell you it is easier on my body and joint pain and my tiredness and not feeling well is not as bad as it was. I had surgery Feb 22 , 2011. The weight loss has taken care of the diabetes and high blood pressure.And i am able to move around more then I used to.
Topic: RE: Need help deciding on medication
I have also been on cymbalta for the past few years. I find it tobe a life saver with my pain. It even helped control hunger for a while. I also have a tens machine that my dr. prescibed for me. I use that alot on my shoulders and legs when the pains is bad. Like others have said, trial and error. What works for some may not work for others.
Topic: RE: Flare 4 days and counting
I have never thought to use those patches. I am also a military wife. I was given patches about 1 year ago when my back went out. I have some and I think I will try it. I had the sleeve back in Feb and I was doing fine with my fibro (managiable with pain meds****il 1 month ago. Now nothing helps. Going to go get them right now.

Topic: RE: It's been awhile
Oh Shauna I'm so sorry to hear about your friend! What a tragedy when she was trying so hard to get better.
I'm also sorry you have joined our ranks. The one thing I tell everyone is you have to learn to make "friends" with the pain. It is going to be there no matter what so we kinda have to learn to go with it rather than fight it! There are meds that aren't narcotic that can be taken and some are anti depressants like the lyrica and cymbalta which also help with the depression we can get from the huge negative impact fibro has on us. I would suggest you seek out a good rheumatologist or pain specialist, they both treat fibro. I know that tiredness, it just creeps thru your body and all you want to do is sleep besides when you sleep youu don't hurt! Neurontin also can help and it has very few side effects. I also sleep with an electric blanket because the heat feels good on my muscles. Just be patient with yourself and try to take it easy as often as you can.
I'm also sorry you have joined our ranks. The one thing I tell everyone is you have to learn to make "friends" with the pain. It is going to be there no matter what so we kinda have to learn to go with it rather than fight it! There are meds that aren't narcotic that can be taken and some are anti depressants like the lyrica and cymbalta which also help with the depression we can get from the huge negative impact fibro has on us. I would suggest you seek out a good rheumatologist or pain specialist, they both treat fibro. I know that tiredness, it just creeps thru your body and all you want to do is sleep besides when you sleep youu don't hurt! Neurontin also can help and it has very few side effects. I also sleep with an electric blanket because the heat feels good on my muscles. Just be patient with yourself and try to take it easy as often as you can.
Topic: RE: Can anyone give me advice....
I'm sorry you are in pain, seems crazy a stranger would care, but just starting on this path, I know there are people who are suffering the same thing.
I think having the support of your family and friends is so helpful. My DH does so much for me, my adult children are also very sweet and caring. I did move from the North to Florida because of the cold. That helps too.
My Dr suggest hydro therapy/exercise. I have lost the minor amount of weight I was carring around, so that should relieve some pain from my joints.
Take care and I hope you overcome you helplessness.
Shauna
I think having the support of your family and friends is so helpful. My DH does so much for me, my adult children are also very sweet and caring. I did move from the North to Florida because of the cold. That helps too.
My Dr suggest hydro therapy/exercise. I have lost the minor amount of weight I was carring around, so that should relieve some pain from my joints.
Take care and I hope you overcome you helplessness.
Shauna
Topic: It's been awhile
Since I've been to this site. I started to come here because one of my bff's suffered from fibro and also had weight loss surgery in January. She didn't have a lot of support from her husband or son, so I wanted to encourage her. I'm sad to say my friend passed away in May, she was in a fatal car accident here in Orlando on I-4.
The other reason I came back is I have also just been informed I have Fibro. For me the hardest part isn't the pain, it's being so tired. I wake up in the morning and I don't feel as if i've slept at all, then moving to get out of bed is like climbing Mt Fiji (had to say that, cuz son is in Japan with the Army). I have had the constant pain in my lower regions, esp my hips and legs since 2004 but I just figured I was just getting older, aches and pains were expected with that.
I really don't want to have to start taking meds everyday. On days when it's so bad I can't stand it, then yes, but I'm worried about being sluggish or more tired than I already am. I have the most amazing grandson (what granma wouldn't say that) that wants to spend time with me, running and jumping and I have been having a hard time even doing that.
I am a vendor at ren fairs, pirate festivals and a few food festivals, most of the time i'm on my feet for 12-14 hours and if I'm having a flare up, it's hard to be chipper, no matter how excited the guests are with my products.
Sorry this is so long, I am looking for the pro's & con's of people who are on meds and the ones who try to suffer through it and not use meds. As always, some days are better than others. Thanks in advance for all your wisdom
Shauna
Mistically Imprinted on FB
The other reason I came back is I have also just been informed I have Fibro. For me the hardest part isn't the pain, it's being so tired. I wake up in the morning and I don't feel as if i've slept at all, then moving to get out of bed is like climbing Mt Fiji (had to say that, cuz son is in Japan with the Army). I have had the constant pain in my lower regions, esp my hips and legs since 2004 but I just figured I was just getting older, aches and pains were expected with that.
I really don't want to have to start taking meds everyday. On days when it's so bad I can't stand it, then yes, but I'm worried about being sluggish or more tired than I already am. I have the most amazing grandson (what granma wouldn't say that) that wants to spend time with me, running and jumping and I have been having a hard time even doing that.
I am a vendor at ren fairs, pirate festivals and a few food festivals, most of the time i'm on my feet for 12-14 hours and if I'm having a flare up, it's hard to be chipper, no matter how excited the guests are with my products.
Sorry this is so long, I am looking for the pro's & con's of people who are on meds and the ones who try to suffer through it and not use meds. As always, some days are better than others. Thanks in advance for all your wisdom
Shauna
Mistically Imprinted on FB
Topic: RE: Day 7 of Savella
Hi Jennifer,
I was on Savella for almost a year. I ended up on the max dose within a few months. Then for some reason, it stopped working. I had very positive results on this medication. I really hope that this works for you. This condition is so ugly and frustrating. I can understand that you don't want to be on all these meds. I'm 38 and was up to four different medications at the same time. It really takes a toll on the body. My doctor put me on Amitriptaline, since he has had positive results with his patients. It helped me tremedously but on the down side, I have gained over 30lbs and have been kicking out kidney stones a few times a month. I ended up going off the medication (titrated down) after I had a treatment of Chinese Acupuncture. It was the best I had ever felt in 1 1/2 years. But...with stress at work and the extreme weather change here, I had to go back on the stuff.
I wish you the best of luck with your Savella!!
B
I was on Savella for almost a year. I ended up on the max dose within a few months. Then for some reason, it stopped working. I had very positive results on this medication. I really hope that this works for you. This condition is so ugly and frustrating. I can understand that you don't want to be on all these meds. I'm 38 and was up to four different medications at the same time. It really takes a toll on the body. My doctor put me on Amitriptaline, since he has had positive results with his patients. It helped me tremedously but on the down side, I have gained over 30lbs and have been kicking out kidney stones a few times a month. I ended up going off the medication (titrated down) after I had a treatment of Chinese Acupuncture. It was the best I had ever felt in 1 1/2 years. But...with stress at work and the extreme weather change here, I had to go back on the stuff.
I wish you the best of luck with your Savella!!
B
Taking one day at a time.