I am so incredibly sorry for all you've gone through.

This might be a good post to put up over on the Sleeve and RnY Forums. The thing with regain is this: no matter how many surgeries you have, you're still going to ultimately reach that point where it's calories in vs. calories out. It's just a fact. Generally it surfaces between 18 and 36 months where all of a sudden we are gaining weight even though we've not increased our calories. What's happened is that our bodies adjust to the surgery (any WLS, and no matter how many procedures you have.).

So our surgeries give us a chance to get the weight off. It's up to us to maintain that.

I've had big regains because I'm a slow learner (60 pounds, 40 pounds and 20+ pounds). But every one of them has been fought back off. Today at ten years post-op I'm now at my lowest weight so far: 145 pounds. My previous low had been 177. So even with regains and time and bad choices we still can make our surgeries work for us.

Just some things to think about. Maybe try some non-surgery solutions before you go full on revision. It's all up to you though obviously.

Good luck, take care, please keep us posted. And again, consider the Main Forums. I think you'll get a lot more feedback over there.

Wow I wish I had some knowledge to pass along to you. It looks like you've already done a goodly amount on your own though and that is always important.

Those procedures only affect the stoma. They posit that by tightening that up, folks will have more restriction for awhile I guess and be able to jump start their weight loss.

This is only my own anecdotal evidence, but I've yet to see anyone have this type of procedure and lose more than 20-30ish pounds. That doesn't preclude your trying it of course. If your stoma has actually stretched and you've confirmed that via endoscopy, there is a chance of your losing some weight once it's fixed.

I wouldn't personally undergo any procedure though until I had reports from the docs confirming the stretched stoma. Even those who undergo full on revisions are still going to come to a point where there is nothing more to be done surgically. These big surgeries give us a chance at a level playing field but don't kid yourself. It's always going to come back to calories in vs calories out. Once that malabsorption is gone from a virgin surgery, it's not likely to come back with any significance. Even with tightening up the stoma.

Good luck, I hope whatever you choose works for you. This stuff is hard. But we can do hard things. Take care, and keep us posted. You also might try posting this on one of the general forums. They get more traffic.

Most people can eat around surgery. Angela from My 600-lb life had RNY lost some weight, then regained...what she lost and gained additional over 200 lbs ...

If you have no****ch i****ch a " My 600-Lb life, Angela's story." Season 7, E15

https://www.youtube.com/watch?v=Digh0313eIk

"...Angela was one of the more unusual patients on the show because she had previously undergone weight loss surgery in her late 20s when she weighed 375 pounds. She ended up losing over 100 pounds. However, she ultimately gained back all the weight she lost and then some. .."

At dr. Now her noted weight during her first visit was 608 lbs. " AFTER RNY. Because she did not change her diet or lifestyle.

As I've had a diagnosis of lipedema in the 15 years since my RNY procedure, I think it's really unwise to expect it would even be possible to achieve or maintain more than about 25# of loss from any kind of revision. So that's really my goal here.

All of these procedures, TOR, Apollo, ROSE, are designed to narrow an enlarged stoma, not the pouch size. They are all pretty similar, and have different names because the surgeons who developed them gave slightly different techniques.

I can only go by the shared experiences of those on OH, as I haven't had it done myself. Weight loss hasn't been great from everything I've read. There has been initial loss, which can be accounted for by pre and post op diets and recovery. But long term it hasn't seemed to help much.