Recent Posts
Topic: RE: Fibromyalgia, WLS, multiple sclerosis
Nana, I'm so sorry to hear about your mom's passing. I lost my mom back in 2001, though not to MS. I don't believe MS is a figment of our minds. I would go to someone else. I personally know 3 people all in varying stages of MS. My MIL's neighbor is in the last stages and has been placed in a nursing facility because he can no longer care for himself and his mobility is gone. Check out Montel Williams' website (I don't have it off hand), but he also has MS.
Keep at the doctors and nice to meet you. So sorry you are going through all this. You're in my prayers.
Shauna
Mistically Imprinted on FB
Keep at the doctors and nice to meet you. So sorry you are going through all this. You're in my prayers.
Shauna
Mistically Imprinted on FB
Topic: RE: wls and fibro
I don't know if you can have MS with having a normal spinal tape. I am not a doctor I am just going off my own experiences. I have had the brain MRI that was inconclusive, because I had lesions on the brain which is normal with MS but there are also lesions from Fibromyalgia so they couldnt say I had it or not. I went to this one dr so that he could order the spinal tape, but he said he didnt want to do it because he felt that I should just live with the symptoms and continue on. Excuse ME. I want to know what is wrong with me because my life has come to a screeching halt. I used to go dancing every weekend even with the fibro but for the last two to three years I have been maybe 3 times just because I dont feel good, plus with my dizziness and vertigo it would not look good to fall on the dance floor LOL. So I am back with my Internist to find another Dr who will do the spinal tap. One thing I do know, if you have a defiancy in Vitamin D your fibro pain will be 10 times worse. Please have your dr test you for this, its a simple blood test and more common with people who have had WLS . Its also another way to see if you have MS. I just read something on this today. I wouldnt have taken that kind of crap from my Dr. How dare he think that you are selling your meds. I hope you have a better relationship with now then you did in the beginning. I will keep you posted on what happens next week after my next appointment. I do recommend that you quit smoking because that will help in making you feel better. Always here for shoulder to bounce ideas off. My direct email is [email protected]
Good Luck
Nancy Godina
Nana1176
GRDS 2001
Dr. Kesheshian
Good Luck
Nancy Godina
Nana1176
GRDS 2001
Dr. Kesheshian
Topic: Fibromyalgia, WLS, multiple sclerosis
Hi, I had my WLS in 2001 and was diagnosed with fibromyalgia in 1992. I have had great success with losing my weight and went from 288 to 135 currently. My issue is that a couple years ago, I was feeling really bad and went to dr and told them about all my symptoms, which some are just like what we have for fibro, but with the other ones the Dr said that it sounded like I had early onset of MS and that we needed to start testing for MS, this scared me because my Mom had MS and had recently passed away due to complications of the disease. Well, they did the initial brain scan and found some signs but not enough to give a definate diagnosis of MS, so I have been now two years going on 3 yrs with the symptoms getting worse and recently had to be taken off work because of them. I have numbness in my limbs, lose my balance, short term memory loss, nerve pain, bladder issues (very embarrassing), fatique, visual disorders, dizziness and veritg, weakness, tremors, impaired mobility, leg stiffness, chronic pain, and swallowing disorders. The only things that I am not experiencing are depression, bowel disorders sexual dysfunction (not sure on this one as you have to participate in this to know if you are having a dysfunction, LOL). I am at a loss as to what to do. My Dr is referring me to a neurologist and rheumatologist. I went to the new rheumatologist and he was a waste of my time, he thinks that fibromyalgia and MS are over diagnosed and are a figment of our imaginations. Wi**** was. If any one has any ideas on where I can turn for information or what I might be able to ask my Dr any help or advise would be appreciated.
Thank you
Nancy Godina
Nana1176
GRDS 2001
Dr Kesheshian
Thank you
Nancy Godina
Nana1176
GRDS 2001
Dr Kesheshian
Topic: RE: i need support please
Welcome to the boards. You are right that wls will not improve fibro pain but getting more active will. Because of my fat I couldn't even walk 5 minutes without being in such pain that I couldn't try again for several days. As I began to lose weight my 5 minutes became daily then increased to an hour, which encouraged me to try riding bike. Losing 65 pounds of giant belly has made everything easier.
If your fibro is food sensitive you may be able to control it easier. I wasn't capable of controling any portion of my diet before my wls.
The one thing I made sure I did was talk to the anesthesiologist before surgery. I had previous surgeries that had triggered horrible fibro flares and I was afraid of it happening again. He simply adjusted what he did to include less sedation and more pain control. I came out feeling like a million bucks (ok, not that great) but no fibro pain.
Good luck to you.
If your fibro is food sensitive you may be able to control it easier. I wasn't capable of controling any portion of my diet before my wls.
The one thing I made sure I did was talk to the anesthesiologist before surgery. I had previous surgeries that had triggered horrible fibro flares and I was afraid of it happening again. He simply adjusted what he did to include less sedation and more pain control. I came out feeling like a million bucks (ok, not that great) but no fibro pain.
Good luck to you.
Highest weight: 212.8 Current weight 135 Lost 77.8 pounds
Topic: RE: wls and fibro
I did change doctors and this one helps more but he allso has an athority complex i use to see one of his other doctors but he wanted to start seeing me because he wanted to watch and talk to me to make sure i wasnt selling my pain meds. witch now he knows i dont it was all kind of upsetting at first he made me feel like i was not really in pain but now that he knows me he knows im not like he thought. im on vicodin, neoritin fleril xanax and all kinds of vitimins i use to be on ms shots witch made me feel awfull but giving my self the shot every day didnt bother me as much as i thought. As for testing my first neroligist said i have progressive ms. and said i needed to start shots as soon as i had my baby. what a shock to find this out why i was 6 months pregnant then after i had my son my neroligist up and left his pracise theres only two neorolgist around hear. The secound guy gave me a lumbar punctere and that came back ok really confused now he says i dont have it so i dont know can you have ms with out it showing on a lumbar puncter all i know is im sick alot and its so unsettling
Topic: RE: Can anyone give me advice....
I agree, there is no way to actually avoid the flare ups. I went for quite awhile without any real flare ups and then one day I couldnt get out of bed and I hurt so bad that even my son hugging me, made me cry, now I have been in a flare up for almost 2 yrs running with only the occasional day without pain. It got so bad that the Dr has taken me off work. But, in my case they are thinking that I have developed MS. My Dr said that sometimes people are diagnosed with Fibromyalgia when it was truly MS as they have a lot of the same symptoms. I have been on a medication regimen for many years and have even tried some experimental surgeries to help with the pain. I too tried Cymbralta but it didnt work for me, I only got really depressed with it.
I just take one day at a time and I try really hard to avoid stress because that will cause you more pain in the long run. I try to eat healthy and avoid eating at the fast food places. I really cant give advise on how to avoid them, because there isnt really anyway that we can. Just remember that you are not helpless and this is not your fault, A good support system is helpful. Do you have anyone you can talk to? If not, start a diary and write down what you did that day how you felt, what your pain level was, what you ate etc, you might see a pattern and maybe it will help you determine what caused your flare up. Unforunately even though we all have been diagnosed with Fibromyalgia, it effects us all differently and what might cause my flare up might not cause your flare up. We all deal differently with the pain and experience the pain in different ways.
Good Luck
Nancy Godina
nana1176
GRDS 2001
Dr. Kesheshian
I just take one day at a time and I try really hard to avoid stress because that will cause you more pain in the long run. I try to eat healthy and avoid eating at the fast food places. I really cant give advise on how to avoid them, because there isnt really anyway that we can. Just remember that you are not helpless and this is not your fault, A good support system is helpful. Do you have anyone you can talk to? If not, start a diary and write down what you did that day how you felt, what your pain level was, what you ate etc, you might see a pattern and maybe it will help you determine what caused your flare up. Unforunately even though we all have been diagnosed with Fibromyalgia, it effects us all differently and what might cause my flare up might not cause your flare up. We all deal differently with the pain and experience the pain in different ways.
Good Luck
Nancy Godina
nana1176
GRDS 2001
Dr. Kesheshian
Topic: RE: First time posting
I find that it doesnt really matter what time of year for fibromyalgia pain. Now for arthritis (I have spinal arthritis) the cold weather effects this. With Fibromyalgia, the pain is caused by the nerve ending miss firing, so it is not effected by the weather. If you are finding that your pain is worse in cold weather then warm, then you most likely have some type of arthritis on top of the fibromyalgia. I kept a diary of my pain for many years to document when it was worst, how long it lasted andd when it got better. I thought by documenting what I was doing, the weather etc then it would give me and my Dr an idea of what activated the fibromyalgia. the end result was there is no rhyme or reason as to when, why or how the fibromyalgia became active. It has its good days and bad days and can go months without any outbursts. I am now in active stage once again, but I was in remission for about a year. I felt great then one day woke up with the complete tiredness, pain all over etc once again. I found that rest, good food (lots of protein) help to some degree but I also am on a medication regimen which has helped over the years. Talk to your doctor and if they are not too familiar with Fibromyalgia, then see if they can send you to a rheumatologist or neurologist or even a pain doctor. I right now go to my regular dr and a pain dr and am just starting out with a neurologist.
Good Luck to you
Nancy Godina
Nana 1176
GRDS 2001
Dr Kesheshian
Good Luck to you
Nancy Godina
Nana 1176
GRDS 2001
Dr Kesheshian
Topic: RE: It's been awhile
Shauna,
I am so sorry about the loss of your friend. I have suffered from Fibromyalgia since 1992 and had my GRDS surgerey back in 2001. At first, I really didnt have any issues with the Fibro until my Vitamin D levels got really low. which was about the same time that I injured my back and ended up in traction for about 8 months. My Dr put me on muscle relaxers and Norco for the pain, but although it releaved some of the pain it didnt really help all lthe time because Fibro pain is in the nerve endings, so I have tried everything from Cymbralta to Savella and plain asprin. I found that Savella worked the best for me but the side effects were awful and I couldnt handle them, so i quit taking it, plus its not covered under a lot of insurance plans. Right now, I am on the muscle relaxer, norco and a Fentynal patch. I have had nerve ending cut to stop them for misfiring and have tried other surgical interventions that work for awhile but the pain seems to come and go. The one thing about Fibro is that it does come and go. Its almost like a remission, when its active it is really bad but then you go for a period of time when you can tolerate everything and the pain is really low. I like those days. The one thing that helps me, is that I have a Dr that understands and she listens, it took me awhile to find her though. If you havent done so already, I recommend that you research via the internet about fibro and the things that help and dont help. They say that exercise helps some people ( I havent found that to be true). try different things to see what helps you, print out information on medications for fibro and take it to your dr and request that they start you on some of them. Just remember that a lot of them are also for depression, so be careful as they can make you very depressed. Right now, my Dr has recently started me on Amytriptialyn and it seems to be helping a little bit only side effect is that I sleep a lot. LOL. If you have any questions or you want to email me directly feel free to do so. [email protected]
Good Luck
Nancy Godina
(Nana nancy)
I am so sorry about the loss of your friend. I have suffered from Fibromyalgia since 1992 and had my GRDS surgerey back in 2001. At first, I really didnt have any issues with the Fibro until my Vitamin D levels got really low. which was about the same time that I injured my back and ended up in traction for about 8 months. My Dr put me on muscle relaxers and Norco for the pain, but although it releaved some of the pain it didnt really help all lthe time because Fibro pain is in the nerve endings, so I have tried everything from Cymbralta to Savella and plain asprin. I found that Savella worked the best for me but the side effects were awful and I couldnt handle them, so i quit taking it, plus its not covered under a lot of insurance plans. Right now, I am on the muscle relaxer, norco and a Fentynal patch. I have had nerve ending cut to stop them for misfiring and have tried other surgical interventions that work for awhile but the pain seems to come and go. The one thing about Fibro is that it does come and go. Its almost like a remission, when its active it is really bad but then you go for a period of time when you can tolerate everything and the pain is really low. I like those days. The one thing that helps me, is that I have a Dr that understands and she listens, it took me awhile to find her though. If you havent done so already, I recommend that you research via the internet about fibro and the things that help and dont help. They say that exercise helps some people ( I havent found that to be true). try different things to see what helps you, print out information on medications for fibro and take it to your dr and request that they start you on some of them. Just remember that a lot of them are also for depression, so be careful as they can make you very depressed. Right now, my Dr has recently started me on Amytriptialyn and it seems to be helping a little bit only side effect is that I sleep a lot. LOL. If you have any questions or you want to email me directly feel free to do so. [email protected]
Good Luck
Nancy Godina
(Nana nancy)
Topic: RE: wls and fibro
If the Savella worked to lesson the pain of the Fibromyalgia then I would talk to my Dr and see if he can give you samples and please contact the manufacturer because they do have a program for people who can not afford the medicine. It might not cover the entire expense but it will help. As I read over your other post you state that the Dr also thought you had MS, if you have this on top of the fibro, then the Dr will need to give you another drug to control the MS. I know that my original testing for MS was inconculsive so they did it again and found that I was in the early stages. Please ask you DR to test your vitamin D levels because if you are low on vit D then your pain will be doubled or even tripled. Vitamin D helps control the nerve endings that result in pain. I would recommend that you go back to your Dr and request that they do a complete physical and then dont let the dr just fill you up with bullS___t. Be firm with them and tell them you want them to figure out what is going on and you need an answer now because you cant stand being in pain anymore. If you feel that your Dr will not listen to you or is not helping you, then go to another Dr. You have the right to good competant medical care, unfortunately, sometimes you need to search for the right doctor. I had to go through 4 different doctors before I found my angel in white. Keep your chin up and please dont let it get you down, even though you want to just give in to it. Please dont, what pain meds do they have you on? My Dr has me on Robaxin, Norco and Fentynal patches. I used to take Savella but the nausea was too much for me. Now that my fibromyalgia is under control, I need to learn how to control the MS. thats my next goal. Good Luck to you.
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