My faith says that I've been rescheduled for the LAST time...

Oct 09, 2012

I know it's been a while but here's an update:

In my last post, I actually thought that I would be off prednisone in May. WRONG!!! I was on it throughout the entire summer and officially stopped on July 17th. If I EVER have to be back on that med, I wouldn't do it, PERIOD. I had gained SO MUCH water weight and regular weight. My face was swollen, aka moon face, my arms, my legs, my stomach, EVERYTHING. The little weight I had lost exercising, I gained back and then some. I felt like I was on a cloud all day, I could hardly walk, my heart would race, I had problems sleeping at night.,and the NIGHT SWEATS, MAN... in the morning, my bed was soaked with water. It was as if someone had poured buckets of water on me in my sleep. Not to mention, I was awaken 8 to 10 times per night to use the washroom, releasing the water weight. It was utterly TERRIBLE. And while all of this was going on, I still had to find the strength to wake up in the morning, walk to the bus, and go to work since I wasn't covered under FMLA at the time. It is only by the grace and strength that the Lord bestowed upon me, that I got through it. I look back on that and all I can say is wow. I actually question how I did it and never do I want to experience that again...

So I had seen my hematologist back in August and she dropped the bomb on me. She said that I would have to be off prednisone for a whole 6 MONTHS and not 3 MONTHS as was orginally expected.  She isn't going to clear me for surgery because she says that people who have had an ITP episode can possibly relapse (and she got mad at me because I didn't know what she was referring to when she used the term ITP. I didn't even know that this is what she diagnosed.) Now my surgery is scheduled for February 4th. I know that it is definitely going to happen this time, I just have a good feeling. For the first time I believe, I'm actually getting nervous...

OAN, I will definitely be switching hematologists after I get through my surgery. I have an AMAZING medical team, all except her... she and I have never really gotten along. I know that's crazy, that you will even have to "get along" with one of your doctors. But we have actually gone back and fourth with one another. She had gotten mad at me one day because her office didn't have my contact info. She pulled out a copy of the letter they sent to an old address and everything. I thought that she would have it because I updated everything with the hospital, but that apparently wasn't the case. When I told her this, and also added that I didn't know how frequently/and if even necessary to see her on a specific bases (because I was pretty much healthy at the time), she has always had an attitude with me every since... and this was years ago....

Oh... my life... LOL...

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