It has been a while...

Oct 15, 2009

It has been a while sine I felt like posting, bloging etc.  but today seems like a good day.  The family is in a holding pattern, lots of Dr. apts in the next couple of weeks.

I got some not bad news, went to an intergastrologist(sp) and we are looking at new meds and there is a possibility it is not acid reflux at all.  Since I am still loosing since the last unfil and everything is under control my surgeon is not pushing removal at this time either.  Which is good I needed a break from that.  I am really still not for the by-pass.

Still struggling wiht headaches though but this too shall pass I guess, or I will learn to live with it.

Work is work, I like it most days but we are still struggling to make it all fit well,  some things are so new.

Overall things have calmed down some and that is good, at least emotionally anyhow.  I can even smile occationally wiht out thinking about it, I like that feeling,  it has been a long time.

My PCP accused me of being OCD again.  Although I deny it he is probably right to some extent.  Al thought you would not know it by looking at my office desk.  It is kind of funny  I have gone from eating to obsessing, or maybe eating was my way of obsesssing.  I don't know.  Too much for right now.

Have to go, I have an apt to get to!  Hope everyone has a great day!
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So I finally admit....

Aug 30, 2009

On Wednesday I had the doc take out another cc in hopes of reducing the acid reflux and hoping sortof it would not (in hopes it had nothing to do with the band).  I have been having much less problems with acid reflux since then.  Thank goodness something started working.

I knew when I walked out of the office that the band was comming out, I think but it really did not hit me until today.  I am glad the acid reflux is less, a little upset that I seem to have no restriction at all but I can work with that (I hope).  Today is the first I was on the board and I was in tears, reading how well others were doing and what they wee looking forward to wiht the help of the band.  Since I will not have a band, this is a resource I will really ot have and I don't know how much longer I will continue to visit the board.  I admit it has been a wonderful tool but I will need to find other resources to assist me in the journey since this tool is not the one ment for me.

Truthfully I think it is just everyting comming out at once.  Although the band is a big decision it is not happening in the next couple of months and is minor compared to the rest of the family.  My dad got some good news, his heart attack did not do major damage to the heart muscle and there is only a 20% blockage that can be controled with meds.  They do not know why he is having heart palpatations but are continuing to monitor him to find out why.  Mom is having surgery on her foot on Wednesday, although the surgery is not generally major due to her current health it may be very dangerous for her.  My sister is seeing a ENT surgeon on Tuesday because they have found a small tumor on or next to a nerve that may need removed.  My cousins baby is having some trouble, she keeps turinig blue and they don't know why although they are seeing a pediatric heart specialist. My dog also has a tumor that is interfeering with her hind quarter nerves and as it grows it will cause her to have more problems and eventually she will not be able to walk etc and we will have to put her in Gods hands.  I know the dog seems like a small part but she is so much a part of the family espically for my sister and I and with everything else it is hitting kind of hard today.  I know, it is not today and I need to see the positive, I still have all these people in my life and I love them all but It hurts so much to see them struggling and I can't do anything to help them except try to be there.  We are trying to keep our days off to a minimum all of us incase we need the time later so my sister scheduled around the surgery and I will be at work this week.  I am keeping them and all who have health issues in my prayers at this time.

Well the puppy (ok dog) is trying to cheer me up so I think maybe a short walk is in order, she likes that and it dosen't do me any harm either.  boy I will need to find a new electronic journal too.  Oh well that is not today.
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I weigh less now than ...

Aug 20, 2009


So yesterday mom and I were chatting and I told her I had decided to just accept the headaches etc as part of my life that we had been dealing wiht them since Nov and,
she interupted, "what do you mean november, you have had a problem wiht headaces since you were a little girl.  When we lived on Lincoln street (I was about 3-4) you would say head hurts take a nap and go to bed..."  she went on with the story and everything they tried to help.

I got currious and took a look at my medical records form 1995 - 2000 (long story why I have those) and yep she was right but I noticed something else too.

I weigh less now than when I was 14.   Imagine (or maybe, like me, you don't have to) being 14 and 247lbs.  at age 11 I was 156.  I was amazed.  I knew I was always "heavy"  I am not sure I knew how heavy how young until last night.  I know a major part of it when I was really young was due to medication.  I wounder however 100 lbs in 3 years, what was going on there, besides puberty.

Well that was my amazing discovery for the week about me so hope you have a great one!
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Just once this year would be nice - but not bad news I guess

Aug 14, 2009

Ok so I have been haveing a ringing in the ears for several months.  PCP thought it was the C-PAP needing adjusted.  It did need the pressure lowered but it did not help the ears.  So he sent me to the ENT to check the hearing.  I went today, There are seeveral common causes and I have none.  My hearing is wihtin normal, none of my meds are known for causing it and I have no other indicators.  Basically no idea, after the year I've had I should not be surprised.  There are some meds that might maybe help sort of but my the docs body language it was a fat chance and I really don't need to add any meds to my ever growing list.  Basicly if it is not keeping me from doing every day things, there is nothing to do (eve nthough it is a little nerve racking at times).  If it starts to interupt my sleep or distract me from working then they will try anti-depresents (too late already there) or can do some behavior training of the brain (basically teach the brain to ignore the sound)  So basically get use to it, it will be around for a while.

You know just once this year I would like a normal something with a normal solution and a positive result.  Oops ok twice I guess the galbladder was one.  Yes I know It could be worse I could be going def, I could have ...  I know and I am greatful for that but I have also lost the enjoyment of listening to a quite morning and just hearing the dog breathing, or sitting and hearing the wind on the grass wihtout a high pitched humm, Or sitting in a quite house,  because it isn't anymore and I usually have to turn on the tvo radio to keep from being distracted by the humm constantly in boht ears and no one can even tell me why.

On top of everyting I have slipped and gained back 5-7 lbs and am so disapointed in myself.  It is getting so hard without good restirction and I admitt all the stress has brought back some bad habbits.  I am trying to get back on track as of today!  Or atleast stop eating the carbs that are leading to the weight gain.  I also know the acid reflux is getting worse and that is not good either so I am going to ask for more of an unfill at the end of the month when I go back to the doc.  All this is also inceasing the stress and that is increasig the acid reflux etc....

Ok done feeling sorry for myself for now.  I have to go finish making and sealing cookies for church on sunday and then take a walk.  I also need to try to do somethig about this headache it is not doing well today! probablly stress!

Glad to get it all out!  I can't talk to others some times it seems so petty.  Complaining aobut the effects of loosing weight.  Not too many understand and even those who do really don't need to hear me complain about what they are alredy going through it.

Heres to a great weekend!!!  (I hope!)
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She got past the psych eval?

Jul 31, 2009

 Ok so Wednesday was a big day, or  it should have been.  One year Bandaversary and first appointment with new surgeon.  I was nervous but hoping for good news.  The dr walked in and it was obvious that he had no idea about my case.  I thought they would have discussed anything out of the ordinary, not finished or needing takend care or my original surgeon said he was going to leave a detailed note on the case, I would have thought he would have glance at the chart.  Guess I was wrong and that started my mental break down.  We never discussed the test resulsts (fortunately the dr. who preformed the test had his office call me wiht the results and all was ok)  We did not discuss the case at all.  I jsut got very up set and ended up crying (as usual)  I tried to explain what was going on but I don't think I did very well.  He told me the band would have to come out.  I told him (yep like a little kid) that my doc would not approve me for surgery at this time so it would not be any time soon, he ask why and I explained that after my last discussion with my original surgeon I talked to my doc about it and according to my doc I am the equivalent of imuno-supprssed due to the stress on the body over the past year and this was befoer the glabladder came out.  He ask who the doc was and after finding out said he could talk to him.  I of course was still crying.  Eventually he ask "what do you want me to say?"  I don't think I knew at least I could not verbalize it at that time.  He said we would meet again in a month and then we would know more about each other.  I went out to make the appointment and was told I would have to meet wiht the PA his next appointment was october.  I was sobing at this point and said I was to meet wiht him and would wait if I had to.  They bumped some one to the PA for me (which made me feel bad for that person)

Don't get me wrong, he ws very patient, never raised his voice and I do understand that my orignal surgeon left him with the work for 2 people and they have not found a replacement yet.  I was not prepared for the appointment, wiht my former surgeon I did not have to, he kind of controlled the conversation always giveing lots of time for questions and taking time for tears. (and yes he saw lots too, over the past year it seems many people have)

I am so frustrated that I left such a poor first impression.  If I were him I would be questioning my sanity and mental stability at this point (truthfully there are days I do)  @ years ago I was not like this.  I was a very logical person who delt wiht things, then delt with the feelings later.  I find these out bursts very unsettling and wish I knew how to control them, I would not even mind if I could make it to the car before the tears started but that is not what happens so most of my docs are use to it now but as a first meeting not a great impression.

Oh well Ican't change that now, wish I could.

Michele
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Wow What a week!

Jul 24, 2009

So this has been the week that was.  I will not say it was a bad week but kind of out of control and frustrating- a no news kind of thing.  It did not help that I seemed to have an emotional event early this week too.  Last night I found out my dog (or should I say my baby) is loosing feeling in her hind legs and it will not get better , just worse, eventually she wil not have use of them at all.

Today at the doctors all the answer were - because you lost weight which seems to have replaced because you are so heavy.  Very frustrating.

Could be worse though so Here is hopping for a better week!
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I am so...

Jul 07, 2009

Mad, angery, confused, tired... Wow that is a lot

Mad that every time I turn around something else changes, as soon as I even get close, bam.  I had the diet down  and started to et restriction then acid reflux, I got  to deal with that then remove sugar substitutes.  Do you realize that also takes our any protein bar or drink that is not full of carbs!!!  No citric acid so drinks are real boring too.  Man!

Angry that I can't seem to get the diet back under control or figured out now.  I am fine until I come home and start dinner!!!!!

Confused - if I could jsut do it I probably woudl not have had the surgery in the first place and I am really frustrated right now too.  Still don't know if I will even be ablre to keep the band tso that i sstill hanging in the air.  The I get mad at my self for worrying about this when my sistre has some pretty - possibly scarry- test results that she does not find out about until later this month. 

Tired, of feeling this way, being physically tired, aching all over and not being able to do anything about it ( can't even take tylenol)

Venting do not solve anything but it does help some times.


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Having a tough time with this, not sure why.

Jul 03, 2009

This time of year is usually great, sun shinning, being outside, time off and some times vacation.  This year is not turning out this way.  I am so not happy and I don't know why.  The weight loss is great.  My job is a pain but that is normal, the headaches are getting very old but we are working on that,  I just don' t get the problem.  Any little issue or even no issue nad I'm gone.  of the deep end.

I am working on it and my dr. says give it a chance, some of my meds may need to adjust.  Ok so there is an issue last year I was on 1 medication, now I am no more than 10, good thing my band is not tight, I guess that is another issue I am still not sure where we are with the band and the dr. office is not helping wiht this.  It seems that I can't get them to ask him a question, that is another story.  So today lets see what is working.

My car is paid off finally.
I have a loving family
I work with the church to help there
I have a great job
I am going to go to the amusement park and ride rollercoasters wiht my brother, yes I even
      promissed the sky coaster, you see I never liked roller coaster even cried on the little dipper, a
      childs rollercoaster the first time,  My borther want to know who I am and what I sis wiht his
       sister. LOL

All of this is great and yet it leaves me sad.  Maybe tomorrow will be better!!!
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Tomorrow is the day,

Jun 22, 2009

Tomorrow is the day I have my galbladder removed.  I am a little nervous but there is a lot to keep me busy today.  Which is a good thing, my nerves are shot and everything makes me want to cry.

Well I have rescheduled the endoscopy, (which ment I had to rescheduel 3 other appointments)which we are not sure I need now.  There is a chance (not much of one wiht my luck) that all the problems or most of the problems with the acid reflux is initiated by the galbladder, or at least that is what I am hoping, not really beleiving since we loooked into this in February, but hoping.  If the symptoms stop before the test date they said to cancel, we will se what happens. 

It is an in and out procedure unless ...  I am taking a bag just in case, With my luck I might need it, and that would not be all bad not all good either. 

Started using the recording c-pap last night, did not notice much of a difference.  It is set for a range and it sences what is needed and records it.  Nice that I don't have to go back and have  sleep study done and I hope this is the issue.

Well work is calling and ther eis much to do.  hope you all have a good week, I plan to be occupies and if I'm not I am sure my mother will help wiht that.
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So where are we?

Jun 15, 2009

Well it has been a while so what is going on lets see

In the past week I have seen 3 doctors.  First my surgeon, he is please with the weight loss, 167 since I first came to him.  He has not had any one else lose that much using the band.  Unfortunatly the Acid reflux is still ot going away which is causing concern.  So a test was ordered to see if there is any damage to the esophagus then decisions will need to be made.  He also told me that he is quiting the practice and is not remaining local.  That was probalby the most stressful news.  I really trust him and beleive he honestly cares, probably why he  is burnt out.  We talked about my options for the future. 
1. If there is no signs of damage and I am ok wiht the acid reflux keep the band knowing I may not be able to fill it any more or at least at a very very slow rate. 
2. Take out the band and switch to bypass.  He said although it is not what he would call a comon practice, it happens often and both he and his partner are quite comfortable and experienced with this.  The reservation her is mine- bypass scares me.
3. Take out the band and see what happens.  If I can not maintain the weight loss then swithc th bypass.  Dr. says he has not had anyone who could maintain with out some form of surgery but with my reservation it might be a necessary step, althought it would also be an additional surgery.
So on the 29 I have the Endoscope and on July 1 I will meet his partner for the second time (he did rounds the day after my surgery) and we will discuss where we go from there.

Second doctor is the neurologist who specializes in headaches.  Very nice man but unfortunatly after everything tath was told me the day before, I was not in the best mental state.  After viewing my CT scan and reviewing my answers to about 30 - 40 min of questions wiht his assistant we met.  He said it is all migrains - cronic.  Taht from the stress for weight loss, surgery and new job the ceritonan(sp) level have droped to a point where I have headaches daily and what were headaches are now migrains and the migrains well lets just say painful.  SO what were the  results
1. change in meds- not the best news since the med he want to use has caused problems for me i nthe past.  but he beleives that wiht a much smaller dose and woring up to the correct does that should not happen this time.
2. Stop all pain meds otc and perscription.  Don't tak them for any reason.  I am to work off them but truthfully just started taking them if the headaches got realllyyy bad and have not had any since Friday.  Yea I still have daily headaches but they did not stop that they just helped keep them managable so since they ahve not been extreme thsi week things are good so far.
3. No cafiene and lot s of water - well this was easy since I have been doing that for ovr a year with the band rules (yes something I did right)
4. Stop all sugar substitutes.  Well once I took a look at my food in the kitchen, this was much harder than I thought and all that fluid I drink, almost all of it was sweetned.  WOW
5. Get proper sleep - easier said than done but hoefully once we get all the other stuff under control that will be easier and they gave some guidelines for this too.

So Two days back to back - that was a lot to digest and truthfully I was an emotional mess over it all.  I know it was a lot to absorbe but truthfully nothing that could not be done if I wanted to.  It just seem that when things start to go right, 6 more potholes ar put in the road.  I am also wondering if it is linked to hormones because I have been trying to track these overreactions and thy all seem to happen 5-7 days before my period starts so either a big coincidnce, my who likfe runs a 27 day cycle or something to look into.

Ok so Friday cam and I saw my PCP.  What good news did he have.  well the arthritus in my knee has not seemed to slow at all even with the weight loss. OK so why did we do this?  He did say that if I need to, and I don't yet, that now I am a good candidate for knee replacement.  Also the knee is being worked more wiht exercise - so that may also explain the lack of slowing. 
He ordered a test (that to his dismay was not scheduled and I was ot informed about) to look at the C-PAP settings.  He thisnk that al over aches are from the setting being too high and me still not sleeping right because of it so that will be ordered.  Also is probably the reason for the ringing in the ears and the feeling of water in the ears. 
Then we talked about the option my surgeon had discussed with me.  I wanted his opinion.  He said that surgery at this time is not suggested regardless of which I choose, unless it is really necessary.  Due to all the stress on the body from the weight loss etc. my recover would not be ideal and I should thik of it as being imuno suppressed.  And switching to bypass now definatly not this year - but he also agrees that wiht out somting i will probably gain the weight back. 
Another fine trip to the Dr.

Don't get me wrong, I value their input and am glad I ahve the resourses to t get the help but a lot at one time.  Then to top off everything my galbladder was acting up, noting really new but different.  then Saturday it started hurting like it never has,  I though with the timing it coud be from the medicine changes but the neurologis said no, nothing he changed would have htat effect then last night at 2 it woke me up and for 45 min was real bad, I almost went to the ER.  Understand my take on ERs, they are for emergencies which means if you are not bleeding uncontrolably, or have something visibly broken or not working correctly it can wait.  If I had had some one to drive me I know I would have gone but I was hoping it would stop.  Fortunatly it did and I know, I think, what it is from so that helps but I am definatly calling the Dr. in the morning.  I hae a trip on Monday that I am a chaperone for and will be 1.2 a continent away for a week.  I really don't want any problems while I am away.

SO thing are good, things are beign done, maybe a little fast at times but I am do OK and as long as I remember 2 things I do well.
1.  God never gives us more than we can handle, I just need to remember to take advantage of the supports he provides too
2. I can do anything one day at a time.

Well it is almost 5:30 am and I am a little hungry since I have been up since 2:00 am so I am goign t ogo make some breakfast.  Maybe even cook an egg since I have aobut 2 hours beofre I leave for work.

Keep the FAITH
Forsaking
All
I
Trust
Him

Have a great day!!!

PS Went to PCP because of terrable pain on upper rt side.  Turns out I may have to have galbladder removed, the question is when.  Add it to the list
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