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Hi, all! I had a BPD/DS with Dr Sudan at Duke in 2013. (SW: 338 CW: 172) I also have an autoimmune condition that requires amontly visit with a Hematologist (she's amazing!) and an IV infusion every month. My recent DEXA is normal and most of my labs have been fine except iron (taken care of by 2x/yr InFed infusions) and my Vit D. UGH! I just can't get that Vit D to stay up and feel well while doing it.
These past 7 years I've been taking VitaLady's D orally and while I can manage to bring up my numbers it upsets my stomach. In the past I have just put up with the discomfort and choked the horse pills down, then when my numbers got pretty good, cut back on the Vit D/ recovered from the tummy upset---but eventually of course my numbers drifted back down again, then started the cycle all over. But I just can't face resigning myself to constant tummy upset with the the Vit D, forever. (I mean, as a DS-er I already have the other intestinal distress issues and that's enough for me haha)
Isn't there some way to take the Vit D by IV? Don't dialysis patients take it this way? Or Crohn's patients? If Vit D is available IM, isn't it feasible by IV? I searched this site for info and only came up with someone in 2009 who had Vit D infused. Anyone else???
Anyone have insight on this? Would regular Vit D infusions even be effective assuming I could find someone to order them? What kind of physician I need to consult with to explore if this is an option for me to simply add to my monthly infusions? I don't care about the insurance implications, if they will cover it or not; I just need to get this Vit D thing fixable, long term. Ideas? Thoughts?
Thanks for any insight, experiences, advice, or personal stories!
Thanks Heather: Two steps ahead - working on it now. However it is a bit of a process and gathering of old doctors notes and reports but I'm pulling it together. However, in the end a group of doctors will determine if they're willing to take me on as a new patient. I think turnaround is 30 days. Wish me luck!!!
Much thanks to you for thinking outside the box!!!
Queenbee
I used to live in Gaithersburg, I never had real good luck with doctors. I'd recommend reaching out to Johns Hopkins in Baltimore. They have a great bariatric program and could probably recommend somebody, it's not that bad of a drive. Wishing you health and happiness.
Heather
Good advice! And I'll be working from home for awhile so maybe I won't have to explain too much to my coworkers whenever we get back to some sort of normal schedule.
I like this. Thanks!
what will you tell them if your gallbladder goes bad? Unless you have already had it out. You do t have to tell them anything legally all you have to say is your doctor is recommending surgery for a health proroblem you aren't required to tell them what it is
there will be questions as you begin to lose weight so be prepRed for that.
Most Aetna HMO and QPOS plans exclude coverage of surgical WalmartOne operations, procedures or treatment of obesity unless approved by Aetna. Some Aetna plans entirely exclude coverage of surgical treatment of obesity. Please check benefit plan descriptions for details.
Oops forgot Bigger issue now is that I've been sick since March 2020 - I weighed 130lbs at the onset.
As of today I am currently 109lbs.
Thanks Janet. Dr Elariny is my surgeon too. Although I've had difficulty locating him during COVID-19. I'm still really sick and in and out of the hospital. I have done research on Gastroenterologist here in MoCo and other surrounding cities but most don't want to deal with the complexity of the surgery or have no idea what Biliopancreatic Duodenal Switch means. I'm at my Wits end. I wish I still lived in Virginia because my insurance doesn't cover out of state except emergency room visits. Is there anything else you might suggest? I have a hematologists, neurologist and pain management doctor. However none have any additional insight. Everyone consistently says eat more but how can you when you nauseous all the time and vomiting when you eat any little thing. I do get hungry but it never has a good ending.
I told my boss the truth and my fellow employees that it was gallbladder.
Real life begins where your comfort zone ends
