Recent Posts

Jammin8317
on 6/26/09 8:39 pm
Topic: RE: Just found out I have sleep apnea
Hi Kelly,

I really believe you have nothing to worry about. For the last several years I have slept poorly and been so tired that I could barely stay awake for more than 8 hours. I was miserable and I really thought I was dying. Oddly enough I had severe chest pains and was hospitalized. It was there that they diagnosed me with sleep apnea. When they released me they gave me a cpap. I wont lie and say the mask was instantly comfortable but you will get to sleep. The amazing thing is that when I woke up the next day, I immidiately noticed a difference. I slept through the whole night and my family said I didnt snore at all (used to sound like a chainsaw). I can go and do physical things without feeling tired and can stay awake for more than 20 hours easy. Im not sure how you are with your condition but I feel I already have a new lease on life. Sorry for the ramble just thought I could comfort you a little.
Crystalyn
on 6/26/09 3:13 pm - Milwaukee, WI
Topic: RE: New CPAP user wondering is it suppose to be THAT LOUD?
Depending on how high your bed is compared to the machine, try putting it on the floor.  It will lessen the noise.  Also a fan set on low will also help block the noise.

Sounds funny but I warm my water in the mircowave for a couple of seconds.....  When I notice have go****er in the hose (aka Rainout), I tilt the hose so the water runs back into the tank. 

Have patience, you'll either love it or you'll wonder what in the world was I thinking.... 

I was lucky, my boyfriend uses Cpap and he was able to help me out.  I've had mine since 2007 and sometimes I still pull my mask off and somehow turn off my machine.  I was told everyone does it at some point or another.

This is a great site for information-

http://apneasupport.org/
            
Carolyn H.
on 6/26/09 2:21 pm
Topic: RE: Sleep Study Post OP
I asked the PA at the doctor's office I went to,  when I lose weight, at what point do I have another sleep study? She said when I lose 25 lbs. I figure I'll do it again after I lose 40 lbs, because I don't want to do it twice. I'm still waiting for my surgery date.

And Yes, God is good all the time!

Blessings,

Carolyn
Have a great day!                        
doodlesll
on 6/25/09 3:21 pm
Topic: RE: New CPAP user wondering is it suppose to be THAT LOUD?
 Hey, I have been using a cpap for several years. I can't tell you how many nose pieces I have tried.
I haven't had too much trouble with the noise. Perhaps your nose piece is not fitting properly. I know when mine sounds like a freight train coming through, that is the problem. If I adjust the nose piece and make sure it isn't leaking the noise reduces. As a matter of fact you can hardly hear it. If the noise keeps up call your people where you got it. Explain and, you should get some help. About the water if you turn the dial to off you should not have the machine trying to manufacture humidity. Water or not. I hope this helps. Keep trying and ask your supplier for help. Good luck and Good sleeping. doodlesll
nbuchi
on 6/24/09 10:20 pm - Mikado, MI
Topic: RE: cpap question...
I have been using CPAP for about 18 months now, the full face mask like what you have.  I have heard, too, that switching to just the nasal mask with the chin-strap helps, but I don't like the thought of something holding my mouth shut.  If you can find the time, you should pop that cushion/seal out of the mask daily, every other day, however often you can, and clean it, but only use Dawn dishwashing liquid.  It will get rid of any oil on it without harming the cushion.  Also, the cushion should be replaced every 6-8 weeks.  Most insurances cover periodic replacement parts.  Also, be diligent with face washing, and make sure you use something that won't dry out your skin too much.
jjones1992
on 6/23/09 12:32 am
Topic: RE: cpap question...

Sleeping in the mask does take some getting used to.  I would wake up and mine would be "just blowing" ON THE FLOOR!!!    Yes, my skin also began to get very oily (already have oily skin) in the area around the mask.  I changed headgear.  I now have the "in the nose" type of mask.  I really like it MUCH BETTER.  I don't have the issues with my skin. 

jdr1208
on 6/22/09 2:27 am - Worcester, MA
Topic: cpap question...

hi i am new here, to this forum, not the site.
my name is jill, i was diagnosed with sleep apnea about a month ago, and finally got my cpap a week ago, i am scheduled for surgery the 20th or july. my question is i know they say the cpap takes some getting used to, and i feel like my actual quality of sleep is better but im waking up a lot more in the middle of the night due to not being able to get too comfortable (i was always a stomach sleeper, cant do that with the cpap) but ive also noticed it seems to be taking a toll on my skin, where i wear the mask (i have a mouth and nose mask) i have been breaking out, getting oily skin, is this normal? will my skin ever get used to it?

thanks!

jill

lucystarr2006
on 6/20/09 11:29 am - WI
Topic: RE: New CPAP user wondering is it suppose to be THAT LOUD?
I am a long timer diagnosed with sleep apnea in 1993. I love the quality of sleep I can get from my CPAP but it does have challenges to master. 

The newer machines are meant to be quieter. Here are some things to consider: If you ge****er in the humidifier hose which happens when you use to much water in the humidifer chamber it will make the sucking noise. Turn the machine off and empty alittle water out of the chamber. You also need to shake the water out of the tubing. So disconnect it from the machine and shake the water out at the sink (otherwise that sucking/gurgling noise will continue). 
If it has a hissing noise, this often means your mask is not sealing properly. Once you lie down try adjusting your mask on your face. For some reason I can't adjust mine when sitting at the bedside. I have to put it on lie down and move it around on my face or tighten the straps until it shuts the hell up! If you continue to hear that noise then you might  need to look at a better fitting mask or nasal pillows. I personally love the nasal pillows because they are a better fit on my face. 

THE CPAP really is a wonderful tool  once you get used to the system. Best of luck. Tricia

Starting weight 336/surgery-288/current-180/nextgoal175#

Example 1 Onderland feels and looks great!!

                                                  
lucystarr2006
on 6/20/09 11:07 am - WI
Topic: RE: problems with pouch and air from cpap
I have severe apnea too and have a setting of 11 cm water. I talked to my pulmonist about this just a few days ago. He stated the CPAP will not hurt the pouch because the air has an opening to leave the pouch just like food and liquids do. 

With severe apnea the weigth loss may not eliminate the sleep apnea. Mine is actually worse as the structures relax with the weight loss. I went from 93 episodes to 120 episodes per hour. Desaturated down to 74% oxygen (should be in the 90's) during my most recent study. 

Call and talk to your Pulmonist about your fears. Remember untreated sleep apnea is dangerous, increases the risk of heart attack, stroke, and sudden death.  
  

Starting weight 336/surgery-288/current-180/nextgoal175#

Example 1 Onderland feels and looks great!!

                                                  
JustMeee0609
on 6/20/09 9:34 am - Tyronza, AR
Topic: RE: STILL pulling it off!
I have had cpap for about a month now. It didnt dawn on me to try sleeping on my back. lol It has been many years since I have slept on my back. Will give that a try. And yes... I pull my mask off also. I was advised to go try more on for a better fit. Maybe then I wont wake up with a sore face.

Just Meee aka Linda    
Come join me in the Bariatric Buddy Group
http://www.obesityhelp.com/group/bariatricbuddy/
 
Highest weight 406, Surgery weight 386, and now on the Losers Bench! 
 

        
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