Recent Posts

Bobby C.
on 12/9/06 7:41 am - Charlotte, NC
Topic: RE: This IS Hell.
One thing that really helped me was switching to a bi-pap machine. With the cpap, I felt like I couldn't exhale because of the continuous pressure. With the bipap, the pressure is lower when I exhale so I don't feel like I'm fighting to breath. - Bobby
L. G.
on 12/9/06 12:12 am - Meadows Curve, TX
Topic: RE: This IS Hell.
I'm still adjusting to mine, but the first two weeks were really bad. I still rip my mask off occasionally, but not as bad as it was at first. I think mine is just sinus congestion. I don't have that feeling of suffication like I did at first. If you need some additional information there are other web sites available. I am a member of apneasupport.com. The site has helped me alot. And one other thing, Angela, I wanted to throw mine out in the middle of the nearest intersection and let a Mack truck run over it. Like I said before, Hang in there, (you too HockeyMom) and it will get better. lisa
Hockey Mom
on 12/8/06 10:55 pm
RNY on 12/19/06 with
Topic: RE: This IS Hell.
I feel the same way! I got mine last Monday and I have not had a good nights sleep since! When I do fall alseep I dream that I am suffocating.
L. G.
on 12/8/06 9:05 pm - Meadows Curve, TX
Topic: RE: This IS Hell.
Hi Angela. I have had my machine for about a month. I was doing the same thing about ripping my mask of in the middle of the night. I was told it was a normal response and give it time. I know it's really hard to resist the urge to chunk the thing across the room (cause I have), but keep trying. If you do rip it off, when you wake up and settle down with the breathing, put it back on and try again. I promise it does get better. My first machine did the same thing to me. I think my pressure was set at 6. I called my DME and they brought me a machine that had a c-flex setting on it. "I'm out within literally seconds" using this machine. I am still adjusting to my machine, BUT it's so much better now. Most of the time I will sleep all nite. Which is a major thing considering I haven't slept a full nite in a VERY long time. Still tired, but it's getting better. In MY opinion (and mine only) is to keep trying. Hang in there, girl. I promise, it does get better. lisa
carolem
on 12/7/06 6:25 am - Austin , TX
Topic: Something iteresting you may not know.....
I have not been a fan of these sleep studies and I really thought this sleep apnea was absolutely the most ridiculous thing I've ever heard of. When they started talking about a CPAP to sleep I really thought someone is just trying to make a lot of money off overweight people which are the main group targeted. I became enlightened when I had to have some more testing done after an echocardiogram came back showing mild pulmonary hypertension. If you go on line to web md and look this up it's pretty scary stuff. I went to my pulmonary doc who ordered these tests and he told me not to be concerned with the PH because it is what he calls "secondary" to sleep apnea. The sleep apnea is believed to be causing it, treat the cause and it's pretty likely to go away. Especially with WLS which is know to clear up the condition as well. Meanwhile I have to be fitted for one of these lovely machines, mask, etc., but I feel a whole lot better about it knowing this is not permanent and that it will clear up a condition that could be life threatening. When they first told me I had mild PH, after what I read in one report, it talked about life expectancy from diagnosis to death is about 5 to 7 years. All they do is give you drugs, possibly a lung transplant, etc. It's not good, so sleep apnea is nothing to fool around with. It's very hard on your heart and can cause heart failure in addition to PH. Just a little info for people like me that thought this was all nonsense.... CaroleM in Arizona
carolem
on 12/7/06 6:11 am - Austin , TX
Topic: RE: Mild Sleep apnea
Okay Bobby, I haven't heard of a bipap. I go in for another sleep study to be fitted for a CPAP and the doctor says there will be several different kinds to try. I don't want all the head gear I see on the CPAP website. I understand that sometimes your nasal passages get very dried out using this machine without the humidifier you can get. What has been your experience? Please advise. CaroleM in Arizona
carolem
on 12/7/06 6:06 am - Austin , TX
Topic: RE: This IS Hell.
I would call your doctor's office immediately. I thought they were suppose to set the pressure when you had your sleep study. There are all sorts of CPAP's including some that just cover the nose area. It's important that we are able to use this thing, I'm not looking forward to it either, I'm going in for another sleep study to do what your trying to do at home. I don't think you should be stressing like this, call that doctor! Carole in Arizona
Angela M.
on 12/7/06 12:11 am - Worcester, MA
Topic: This IS Hell.
So I just got my CPAP machine three days ago and honestly, I want to sma**** I am someone who usually adapts to weird things pretty easily but Im struggling with this SO MUCH. Im supposed to be wearing it every night so it can adjust the pressures so they can set mine in 8-10 days but I CANT FALL ASLEEP WITH IT. First night I did but I woke up ripping it off my face because I felt like I was suffocating and then 3-4 times after that Ive been so tired that I cant keep my eyes open and Im passing out...then I put it on and I lay awake for at least an hour before I take it off, lay down...Im out within literally seconds. It is only set at 4, the lowest pressure. I know it takes people a while to get used to it but I cant even sleep with it for a tiny bit of time. Does it get better or am I just one of those people who absolutely cant tolerate it. I am determined to fight this thing so I'll keep working at it but man Id tell you, I really wanna take a hammer to it.
mamamc
on 11/30/06 4:01 pm - AL
Topic: RE: Dry Mouth
I have found some stuff I put on my tounge it orabase gel Its a gel you put on your I use a mouth bite because I clench my teeth at nite I found it a cvs good luck Wendy
Bobby C.
on 11/29/06 9:49 am - Charlotte, NC
Topic: RE: Mild Sleep apnea
Just my two cents, I had surgery to correct the sleep apnea. They removed excess tissue and also straightened out my nasal passages. In my case, it was done in vain. Still had apnea, my voice changed. I use to have a deeper voice, now it's a different tone. Still wound up getting a cpap which helped me feel more rested. After a couple of years, switched over to a bipap which was even better for me. Whatever choice you make, good luck! - Bobby
Most Active
×