Recent Posts
Topic: RE: This will be first nite on CPAP...
I have had my cpap for about 6 years now. I think it took about a week to get used to it completely for me. I wore it whenever I was relaxing to help me get used to it. Infact, they recommend that you do that. I just got a new machine that has a variable pressure depending on my needs as I sleep. So far, the ma*****e is not working. I am still waiting for the company to contact me so they can fix it. It keeps alarming for some reason.
Best of luck!
Topic: RE: How many times did you stop breathing???
Hi. What mask are you using and what setting is your machine on? I am having major issues with the mask that I have so I have to decide what kind to try next. My machine is on 8. I am not sleeping with most of the time because the mask won't stay on my head. The DME says I can't get another mas****il April because of insurance. I certainly can't afford to buy one. My surgery is March 20th so by the time I can get another mask I probably or hopefully won't need one for much longer.
The few times I have gotten to sleep with it and for the short time it would stay put it did help me feel more rested. I would love to know what a full 8 or 9 hours with it on would be like.
Jenifer
Topic: RE: How many times did you stop breathing???
I guess I stopped 22 times per hour and being that I slept almost 9 hours, I guess that would be....let's see.....(digging for calulator)......198! Wow that is a lot!!! He told me I only have moderate, not severe. Only 5 times an hour was my airway totally restricted, and the other times, 18 or so, were partial. So, maybe that is why it is only moderate.
My oxygen was always pretty close to where it should have been.
I am very encouraged by reading the replies to your post by the ones who have more energy and such.
My dad has been on CPAP for going on three years and he says the same thing! He has tried several masks, so I am hoping this one works for me. I had considered the nose pillows one and will try that if this one doesn't cut it.
Oh, I am so excited to try this out and to get support here! Wahoo!
Topic: This will be first nite on CPAP...
Just had consultation with dr. today telling me results of sleep study last week. I do have moderate apnea so am on a CPAP starting tonight. I hope it goes well, as I have to be on the machine for 30 days before I can have surgery. I am not scheduled yet, but I meet my surgeon a week from today, March 6. I have done pretty much everything else I needed to, so anxious to get this CPAP thing down, too.
I am a very restless sleeper even though I am on Trazodone at night, among other anti-anxiety and Bipolar meds. I am hoping to get some sound sleep. It has been so long!!!!!!
I am hoping all goes well; if not, I am sure I will find plenty of support here! Well, here's to a good night's rest for us all!!!!!!
How long did it take everyone else to get used to the machine? I have the one that goes over my nose, a mask thing. I am hoping my mouth stays shut so I don't wake up non-stop!
Topic: Burning pain
Just started my cpap use 4 nights ago. First nights were so-so but last 2 have slept great. Only problem is 2 nights ago I awoke in the morning with extreme burning pain and numbness in the front of my left thigh area. This morning it was a bit more severe but in my right front thigh area. Felt like someone had thrown boiling water on me !! Ripped off the mask and hopped out of bed ...Both times the pain went away fairly quickly although today there is a bit of lingering numbness. Anyone ever heard of this ? Never had this problem before the cpap machine. I hope it doesn't keep happening as I like sleeping with this thing ! I can only assume I am sleeping more deeply and on my back more because of the mask and maybe I'm not turning enough as a result. I dont know , What do you think ?
Topic: RE: Severe sleep apnea
Hi everyone,
Thanks for your all kind words, suggestions and ideas. It's nice to know I am not alone in this. Last night, I decided to try something different. I do have a C Flex machine so it starts at 6 and within 45 minutes it goes up to 14. Well since the air pressure starts to come out thru the sides of the mask and above the eye sockets when it hits 14, it wakes me up as it makes this horrible loud whistling sound.
So last night, I automatically put it to 14 instead of 6 and sat up in the bed and adjusted the straps on the mask to be more snug as within a minute it started to sing again.
Then after 5 minutes, I lay down with the mask on snuggly. Right now, I use 2-3 pillows and sleep propped up but due to my weight as I lie on my sides, my rib cage, stomach, etc start to hurt and feel crushed so I have to change sides frequently. I try to take one pillow away but as soon as I lay flat, I feel like I am suffocating.
I did sleep a little bit better last night but for the past few weeks, I am only getting about 4 hours of sleep a night. By the end of the week, I am totally exhausted. The good news is that I do much better on the weekends as I am off work and therefore am more relaxed and can take a nap if needed.
I see the respirologist on Monday finally after waiting 6 weeks. Here in Canada we have free universal health care but the catch is that there is wait to see specialists. Our goverment does not believe in private health care so we don't have other options.
Thanks again everyone.
Sim from Vancouver, BC Canada
Topic: RE: Severe sleep apnea
Bless your heart Sim.
I was diagnosed with severe apnea in November 06. I also had a horrible time getting used to the mask and the machine. I know how hard it is to get used to one. My second machine has C FLEX on it and it is much better than the one that I had before. Be patient and don't give up. I promise it will get better. I hated my machine at first. I had a fight with it every nite, but now, I don't see how I could get along without it. The white noise is kinda soothing and it will help you get to sleep. Not that you need any help getting to sleep after you get used to it. Hang in there, it does get better.
Prayers for you!
lisa
Topic: RE: Severe sleep apnea
Hi. I too panicked when I woke up and my pressure was at its highest point (off of the ramp). What helped me was to request a machine with CFlex option, which lowers the pressure when you are exhaling so that you are not breathing against the pressure. I am still new at this too but that helped me more than anything else. If your machine doesn't have that, check into it.
FYI I had to argue with my DME company to get this machine so be prepared to say & stick by what you think you need. I also have found a lot of info on cpaptalk.com
You can post questions there or read old questions. Good luck. Jenifer
Topic: RE: Severe sleep apnea
You poor thing. That sounds horrible. I have sleep apnea also and am having a hard time getting used to the cpap also. I go to sleep ok with it, I just take it off at some point during the night. They can't figure out what to do for me. They lowered it from 15 to 12, and I have tried 3 different masks. I guess I will keep trying to get used to it. Good luck to you,
Chrissy